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Tag: ms over 20 years

Post Ocrevus infusion

Post Ocrevus infusion

I’ve been really tired. I have gone to sleep by 9:00 since I had the infusion done. However one of those days was because of the Benadryl given with the infusion. I went to physical therapy but I was fatigued easily. Plus my face has a lovely rosey red cheek blush that cane on as soon as I moved. My therapist decided at the 1/2 point that it was enough. It wasn’t my greatest appointment but I’m glad I made…

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Ocrevus infusion today

Ocrevus infusion today

600mg in my home. Seems like a good day to do an infusion. My tv, my dogs and my comfy chair. I’m good. All of a sudden on Friday everything worked out. They were even trying to do the infusion Friday. Crazy. Zero to sixty. So today we agreed on. What was I doing? I was free, let’s get it done.

Weight, Multiple Sclerosis and me

Weight, Multiple Sclerosis and me

I had my physical yesterday and brought up my favorite topic, weight. Once again I put on a couple of pounds. This has been a very frustrating year for me when it came to weight. My doctor finally made some sense as opposed to just saying it’s your multiple sclerosis. He explained why. Yes, I do swim which is great, but I also sit around quite a bit. As my symptoms have gotten worse, my muscles have atrophied to a…

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No Ocrevus infusion yet….

No Ocrevus infusion yet….

You just can’t make this stuff up. I think the last problem has been finding an agency to come to my home for the 5 hour infusion. The reason I say I think is because I’m not even 100% sure that is what the issue is about. If that is the hold up I told them I could do it there but now that might not be an option. I’m very confused. I’m still not sure if I’m getting the…

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Keto diet for MS

Keto diet for MS

Wouldn’t be me if I wasn’t extreme. Vegan to Keto, that’s extreme. Why would I even think about this? A movie called the Magic Pill on Netflix. Ironically, it was watching Forks over Knives on Netflix that I became Vegan. My diet isn’t working anymore and hasn’t been working. I’ve been maintaining a ten pound unexplained weight gain following a plant-based diet and tracking on weight watchers. This past week I put on an additional 4 pounds. I don’t eat…

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Schools back reminder about oils Doterra

Schools back reminder about oils Doterra

I can’t say enough good things about these oils. I started feeling horrible on Tuesday with a chest cold starting. I consumed my one drop of Oregano and one drop of Onguard in some water. I woke up Wednesday not much better but continued throughout the day with Oregano and Onguard. By Thursday I was feeling better. By Friday, I was fine and I have MS and a weakened immune system. My daughter, at college, said she needed Oregano and…

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Pain, twitches and spasms oh my!!!

Pain, twitches and spasms oh my!!!

https://www.mstrust.org.uk/news/views-and-comments/neuropathic-pain-invisible-illness Neuropathic pain affects up to 25% of people with MS. It is a consequence of damage to the myelin that surrounds nerves in the central nervous system. Very commonly the pain is not due to physical damage to the nerve but as a result of a physiological change within it. This means that even when the initial cause is treated or removed, the nerve remains permanently changed and the resulting painful symptoms can become a long-term problem. Once present,…

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No Ocrevus infusion today

No Ocrevus infusion today

Shocking I know. This time there is a portion of my error involved. I told them last month my secondary insurance was Aetna, technically it is not. It is only secondary for certain things otherwise my secondary is Medicaid. What I’m not in error about is once again the infusion place waited until last minute to verify insurance. Since the information was wrong, they needed more notes from my doctors and couldn’t get approval done in time to order the…

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MS Bike Tour 2018

MS Bike Tour 2018

Each year my step-brother bikes for Multiple Sclerosis. This is his reasons, his letter and his team. Please donate to help find a cure for MS. He bikes under Team Jamie but he bikes for us all. Why We Want to Create a World Free of MS 9! years ago, when I said I wanted to ride 30 Miles for an MS Bikeathon, my step-but-real sister Jamie said “I can barely walk 300 feet – why do they do these…

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Plenty of fish rejection

Plenty of fish rejection

I took the plunge and rejoined plenty of fish. I had to re-enroll because every time I tried to retrieve my password, that I have forgot, it never sent me the link. So I answered all the questions, set up my profile and uploaded pictures. I got a phone call so I left the app before I had a chance to browse. When I came back it logged me out. I tried to put in the new password that I…

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