I’m doing a lot better with my new wheelchair now. I don’t love everything about the chair but I am consistently using it now. It turns horribly, I hate that. It is also difficult if you maneuver wrong and hit a wall. You can’t just do a simple correction. You have to move forward or back still hitting the wall to maneuver yourself off the wall, if that makes sense. The wheels that move this chair are in the middle…
I had a comment yesterday by Mary suggesting Botox for my many trips and accidents with the bathroom the other night. Waking up to use the bathroom all night long. I’ve heard of this treatment option but I’ve never looked into it for the one thing she mentioned, you have to self catheterize. Patty concurred with that comment this morning too. However, Mary started me thinking. I would love not having accidents anymore. I would love to stop worrying every…
Amazon’s been promoting shark week on discovery channel for a while now. However, now the promo is Tyson versus jaws, rumble on the reef. Is this really what we’ve lowered ourselves to? I actually like shark week. They’ve actually had some really interesting programs. I think my stepdad’s told me it is the longest running cable event in history. Do really need to be promoting it alongside Mike Tyson in his boxing gloves? OK, maybe it’s just me. It is…
Is summer over yet? I’m ready to put on my oversized sweatshirt. It doesn’t matter that I stay indoors with AC the humidity penetrates to my bones. I know this question was asked by Steve over at MSich Chronicles http://msichchronicles.blog/2020/07/29/evansville-heat/, but how do people with MS live in hot, humid places? I’m in countdown mode until I can officially say its Fall. Right around the time of my next Rituxan infusion. For any new readers, I switched back to Rituxan…
I spoke with my case manager for my insurance today. Before Covid started, I had a really wonderful case manager. Every month she’d call and check in, as per her job description, but she always made me feel like she genuinely cared. She remembered things about me not necessarily related to my medical case. Then one day she was just gone. I didn’t know if Covid was the reason for the change, if she quit or left, I just had…
This is the best news article I’ve come along in a long time. It was titled: ‘Holy Grail’ MS discovery could prevent disability using diabetes drug For the first time in ages this talks about stopping the disability not reducing relapses. https://www.sciencefocus.com/news/holy-grail-ms-discovery-could-prevent-disability-using-diabetes-drug/ In MS, the protective coating surrounding nerves known as myelin is damaged causing them to become less energy efficient which makes them vulnerable to further damage and causes disability over time, the MS Society said. < p style=”box-sizing: inherit; margin:…
Well my appointment with my OT wheelchair evaluators was good and bad. I was having some issues transferring into my new chair. Having issues with my new wheelchair. The bad was the chair doesn’t get an lower. My therapist explained that I need to work on the ways to make transfers work and keep them safe. They definitely recommend training with a sliding board and with a one on one trainer for transfers. Since I won’t be cleared by my…
Good morning to all. I just sat down from my morning exercise. My body certainly feels it but my heart rate didn’t reflex the same results. I have not taken one day off since I started the MS gym program. I just changed my workouts and incorporated the gym too. The last time I didn’t close my exercise circle (the green circle) was back on June 25th. When I complete this week, I will have completed the program I signed…
There are so many good things about this wheelchair but unfortunately there are a few bad things. I have been consistently in the new wheelchair now for a couple of weeks. I waited to use it for a couple of weeks after I got it. Between breaking the mirror and Minx being so tiny, I couldn’t do learning a new wheelchair and avoiding him at the same time.New and old. In using the chair I realized some major issues. The…
I work so hard!!! I workout everyday. I try to incorporate weights to build my muscles and my strength. I try to eat right. I take a shitload of pills to offset all my MS symptoms. I spend more money than I can afford on good vitamins that I take daily. For what??? It gets hot and my body forgets it has any muscles. I suffer fatigue and I can’t do anything on my own. I once again ended up…
