Pity party blog today. I’m just angry today. I wrote my whole blog already was ready to post it but my hand that holds my iPad started to fatigue and my finger hit the settings button on the side panel…lost everything I just spent 30 minutes writing. What did I do wrong? I exercise six days a week. I try to eat somewhat healthy. I take my medicines. I still get worse. I don’t know what else to do….
A plant based diet is a diet based on fruits, vegetables, whole grains, and legumes; and it excludes or minimizes meat (including chicken and fish), dairy products, and eggs, as well as highly refined foods like bleached flour, refined sugar, and oil. A 2013 Nutritional Update for Physicians stated, “Healthy eating may be best achieved with a plant-based diet, which we define as a regimen that encourages whole, plant-based foods and discourages meats, dairy products, and eggs as well as…
This picture hangs above my kitchen table. It was originally a gift my sister and I bought for my dad but has been with me since the day we tried to give it to him. My dad explained art doesn’t speak the same to everyone. The picture always spoke to me. I always fantasized looking at this picture. To be that wealthy, beautiful lady dancing in the rain on the beach with someone she was completely in love with. I…
I have finished my first bottle of high dose biotin. I’ve been taking a 100mg pill three times a day as the clinical studies patients were taking. My doctor felt that it was an excellent option for me to try since I am clearly progressing. She found a website www.highdosebiotin.net where you can purchase the pills without a prescription. It is slightly costly at $60 a bottle. Before I tell you my first month thoughts on it let me explain…
In New York, you don’t need much to get a permit for handicap parking. I got my first handicap parking permit when I was working in NYC for the parking at the train station. It was very early in my MS years and I was relatively well at first look. I’m sure when I used the parking permit and people saw me get out of the car there were quick judgements that I looked fine, why did I need a…
Billy Joel’s song Honesty is playing through my head right now, why? Because when it comes to your MS doctor it is the only way. Your MS doctor is probably a neurologist of some sort maybe they’re an MS specialist maybe they’re not, but whatever the doctor you need to have a special enough relationship with them that you can speak honestly. You need to be able to be really comfortable that you could say anything especially as the years go…
It’s not listed in the MS symptom book but I have issues regulating my body temperature. It happens more often then I care to admit to and usually in the morning when I go out for either brunch or breakfast. I get coffee nothing unusual and eat and it causes my body to sweat. Sometimes is only a mild thing other times I’m in a full blown sweat where my hair line is wet my clothes are wet and you’d…
At the time I probably meant when I said all that positivity stuff but it didn’t take long for it to go right out the window. I do try mostly to follow a very positive lifestyle but sometimes the MS just gets to me I get overwhelmed and things go downhill fast. My day didn’t really start good even before I wrote that post. During my exercise I wasn’t in a good mood I wasn’t happy with my program I…
I got my first infusion of Rituxan on May 29 and received the second September 16. Rituxan is technically not slated for MS as of yet however it’s counterpart Ocrelizumab is its sister that will be coming out in 2017. What this drug does is it knocks out all the B-cells one of your immune fighting cells. I’ve been on just about all of the MS therapy drugs at some point or other except for the newer ones that have…
*** this exercise was from a book I read return to love by Marianne Williamson that I did previously when I read it I was recommended again to be done at my life coach so this part of the exercise is the letter that MS writes me in response to the letter I wrote yesterday. Dear Jamie, I’ve read your letter and I can hear the pain in your words. I don’t know why I chose you. I don’t even…
