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Tag: ms treatments

Alpha Lipoic Acid and multiple sclerosis

Alpha Lipoic Acid and multiple sclerosis

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At my neurologist appointment she wanted me to start taking Alpha Lipoic acid 1200mg a day.  She explained that like the biotin study I talked about https://multipleexperiences.org/2016/10/24/high-dose-biotin-with-progressive-ms-a-patients-review/ It was shown to help patients with secondary progressive multiple sclerosis. The vitamin is inexpensive. I got a bottle of 600mg on Amazon for $14.99. I take 2 a day. I just started yesterday. Like anything I will keep you updated to anything I’ve noticed both good and bad with my own MS symptoms. I…

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My MS neurologist checkup

My MS neurologist checkup

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I have 2 neurologists. One is a straight neurologist who diagnosed me 18+ years ago and has been with me since.  The other is a multiple sclerosis specialist in New York City who I’ve been seeing for about 2-3 years now.  Both of them work on different aspects of my MS. My neurologist is usually the symptoms manager. He prescribes the daily drugs I take. The specialist deals with which MS drug I’m on. The blood work, MRI scans and…

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Multiple sclerosis; myths and facts

Multiple sclerosis; myths and facts

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Multiple Sclerosis has a lot of false information out there. Today I felt like talking about the Myths vs the facts of MS.  I got this from Youdontknowjackaboutms.com.  My thoughts are written in red.   MYTH: MOST PEOPLE WITH MS ARE DIAGNOSED AT AN ADVANCED AGE. FACT: Most people are diagnosed with MS between the ages of 20 and 50. Though less common, MS can also appear in young children and teens, as well as much older adults. I was diagnosed…

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Multiple Sclerosis silent symptoms

Multiple Sclerosis silent symptoms

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MS fatigue one of the most difficult symptoms to explain and deal with. 80% of all MS patients deal with this at some point or another. Fatigue is way past a feeling of tired is to the point of absolute exhaustion. It’s the feeling that each limb is 100lbs heavier than it is. Just walking the few steps to a bathroom is daunting and overwhelming. It never fails you’ll be talking to a friend and you’ll say I’m tired (meaning…

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57 reasons I’m going vegan according to nursingdegree.net

57 reasons I’m going vegan according to nursingdegree.net

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Starting Saturday I will be following a plant based diet. Why Saturday? One of my birthday gifts from my sister and brother-in-law was a gift certificate to Terra Kitchen. They are a home delivery food company that sends the ingredients and you put the meal together. The difference is they cut the ingredients for you which for me is tremendous because I can’t do that anymore.  My first delivery is Saturday. I also ordered from Veestro the 21 day kick…

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Bladder issues with multiple sclerosis

Bladder issues with multiple sclerosis

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I’ve blogged on this issue before but I wanted to revisit it again. I HAVE BLADDER ISSUES. I can have both hesitancy and incontinence. However my incontinence is more that I get the feeling I have to go to the bathroom and have a very short amount of time to get there.  What happens, and this I’ll never understand, is as I get closer to the bathroom that’s when my bladder starts to release, thus the accident. I wanted to…

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Multiple sclerosis in Yoda’s words

Multiple sclerosis in Yoda’s words

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Star Wars, The a Empire Strikes Back. My favorite of the original trilogy movies. Why? It’s the struggle the dark side the bleak unknown of the outcome. It has hope though as Luke and Leia watch Lando Calrissiam fly away in the Millennium Falcon in search of Han Solo. When it came out in what 1980 never thought that certain lines would play in my head when relative to having multiple sclerosis. This line Yoda says does. It’s because I…

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Multiple sclerosis pity party

Multiple sclerosis pity party

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Pity party blog today. I’m just angry today. I wrote my whole blog already was ready to post it but my hand that holds my iPad started to fatigue and my finger hit the settings button on the side panel…lost everything I just spent 30 minutes writing. What did I do wrong? I exercise six days a week. I try to eat somewhat healthy. I take my medicines. I still get worse.   I don’t know what else to do….

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High dose biotin with progressive MS a patient’s review

High dose biotin with progressive MS a patient’s review

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I have finished my first bottle of high dose biotin.  I’ve been taking a 100mg pill three times a day as the clinical studies patients were taking.  My doctor felt that it was an excellent option for me to try since I am clearly progressing. She found a website www.highdosebiotin.net where you can purchase the pills without a prescription. It is slightly costly at $60 a bottle. Before I tell you my first month thoughts on it let me explain…

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MS drugs getting a cold with a weakened immune system

MS drugs getting a cold with a weakened immune system

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I got my first infusion of Rituxan on May 29 and received the second September 16. Rituxan is technically not slated for MS as of yet however it’s counterpart Ocrelizumab is its sister that will be coming out in 2017. What this drug does is it knocks out all the B-cells one of your immune fighting cells. I’ve been on just about all of the MS therapy drugs at some point or other except for the newer ones that have…

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