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Tag: MS

Is one of the medicines working?

Is one of the medicines working?

Yesterday I wanted to write a post about which medicines are working. I woke up yesterday feeling great, great as far as a good MS day. I worked out Saturday, Sunday and Monday having no pain in my arm or shoulder.  What was more amazing was my stamina. I was able to get through each workout. Even though I napped all three days, I’ve been napping most afternoons when I haven’t worked out Anyway. What I noticed is my legs…

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I am simply happy

I am simply happy

I have to admit something, since I started taking Prozac again, I stopped crying over everything. I was literally crying over everything good and bad, happy and sad, it didn’t matter. I didn’t want to believe it but I was not altogether. It’s been maybe 5-6 months I’ve been back on it and I realized something the other day. I am happy Is my life perfect, absolutely not, but I’m happy. I started my spiritual journey over a year and…

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Yup, another day in my life…

Yup, another day in my life…

I don’t like to complain in my blog. Ok, sometimes I do. I live with a chronic illness of multiple sclerosis everyday, eventually you break and post your disgust. I’d like to say that I don’t do it often. That being said, I have to complain this morning over just some stupid stuff that is really all resolved now. It would have been my blog post yesterday but I had that migraine and I just couldn’t focus to write. It…

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Ocrevus infusion aftermath conclusion

Ocrevus infusion aftermath conclusion

Yesterday was a rough day. I was very uncomfortable and tired. It happens but the good news is I knew WHY it was happening. I slept a lot yesterday. I took a 2 hour nap on the couch with my fur babies on either side. Even with the nap I still went into bed at 9:30pm. I feel less fatigued today, I don’t feel that weight in my bones but my skin is still sensitive. I HATE steroids. This was…

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Life with MS and living alone, I’m a fall risk

Life with MS and living alone, I’m a fall risk

OK, maybe this is a little too premature. I mean this is only day two of being home without my daughter. I had to run the first errand today that normally she would run for me.  Needed money at the bank. To take my walker out to go to the ATM that’s just way too many steps. So I wrote a check out to myself and cashed it at the drive-thru teller window, it worked. I have to be smart…

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Ocrevus infusion cancelled

Ocrevus infusion cancelled

That was the message I received on my answering machine at 3:42 on Friday afternoon. I, of course, didn’t hear this message until late Friday night because I was in the city moving my daughter into her dorm. Of course this was Friday, they are closed Saturday and Sunday and my infusion was scheduled for Monday. Of course they offered no explanation as to WHY this was cancelled…was there another insurance issue? Drug issue? No idea. Just your appointment on…

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These things need a road test, drivers licenses and renewals

These things need a road test, drivers licenses and renewals

I’ve had my travel scooter I use for years. It’s very light, folds into three parts and is perfect when I need to travel somewhere. However it is nothing like my electronic wheelchair. That one is much heavier, turns on a dime, but isn’t portable because each part is extremely heavy. Yesterday was day one with my daughter in the city. Her and I took my travel scooter by train. When I get into Pennsylvania Station, it’s always busy with people…

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Not one of my finer moments

Not one of my finer moments

Well I can definitively say that chip on my shoulder I work so hard to get rid of has not disappeared. I was having dinner last night with a friend and her son. My daughter has been friends with him since kindergarten. They have a brother and sister type of relationship and his mom and I have spent so many Friday and Saturday nights out together that we have so many memories to laugh about. Anyway, I drove my daughter…

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My first Ocrevus infusion

My first Ocrevus infusion

The appointment was called for 11 but as I’m walking out my door, I received a call that they still didn’t have the pre-medicine orders from my doctor. After  that call was made, yet again, they informed me I can come at 12:00. I got there and it just took time to get things rolling. Except for a TV and a comfy chair, it was an institutional type of room. However, the people were very nice. I knew exactly what…

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Things that go bump in the night, or the concrete.

Things that go bump in the night, or the concrete.

I got back from my sisters at close to 8pm last night. Whenever I go away and the trip ends, the highlight to coming home is seeing my dogs. No big shocking news there,especially if you follow my blog. I stepped out of my car and looked up at my window to wave hello to my marshmallow howling in the window. I do this every time I come home since his face started looking out for me. Well, unfortunately, last…

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