Doctors, doctors and more doctors. I have a lot of appointments coming up. Yesterday I was saw my neurologist. He’s been the doctor I’ve been with the longest, the one who diagnosed me 19+ years ago. At this stage of the game with my MS he treats me systematically. The specialist in the city treats me for my major MS drug. This is a section from a my own blog about doctor day check ups. It’s doctor day. What does that…
My daughter’s first cochlear implant was done when she was 3 years old. When I made the decision to put in a cochlear implant, I was also making the decision to make her completely deaf. She would have absolutely no hearing in the implanted ear when the cochlear was off. This is a sweet video of a young boy whose implant was turned on for the first time https://youtu.be/9EVNfd1igoE. This was not AT ALL how it went for us. My daughter…
I have so much going on in the next month I’m a little overwhelmed. I’m trying not to think about it. The most important thing is my daughter turns 18 in a week. ONE WEEK SHE’S 18!!! How did this happen? What a long road we had. My daughter was born a little over a year after I was diagnosed with multiple sclerosis. The neurologist took me off birth control, and the pullout method didn’t work. The best accident I…
I came home from physical therapy, completely spent. I put on the television and there was an infomercial on for the Veggie Bullet. Within 13 seconds I was online checking it out. I use a Cuisinart food processor that I received as an engagement gift. Let’s just say that if I was still married, yesterday, May 25, would’ve been my 21st Anniversary. So the Cuisinart was an engagement gift which was easily received a year before that. It mostly works fine…
I was diagnosed with MS in 1998. That was over 19 years ago. It’s 42.2% of my life. That’s a long time. There’s only one sure thing with a chronic disease, it holds true with any situation, the only part fully in your control is Your attitude Yes, you could eat right, take the medicine as directed, exercise, not smoke, and not do drugs, these are all wonderful things that may slow down a disease, but it won’t cure one….
Today my arm was hurting so much I couldn’t work out. Couldn’t even do Zumba in a chair because my arm couldn’t do the moves. I am extremely frustrated and just deflated. 8 years I’ve woke up and workout. I’m now on 4 days I haven’t with Sunday being my normal day off. Doesn’t even make a difference. My MS was still awful without working out anyway. My arm, this stupid tendonitis or tendinitis (not sure on spelling) affects everything. I can’t…
I follow all the blogs I come across with people that have a MS. I like to see how they deal with it what’s going on with them, what medicine they take, etc. I like to read how they deal with the obstacles of having MS and balancing life. One of my personal favorites is Jen from http://Www.trippingthroughtreacle.wordpress.com. Jen’s blog is uplifting and inspiring despite her illness. Jen has had MS for over 20 years. For me especially at 19 years…
This is me, raw, no makeup, in my pjs, I may have brushed my hair. This is my blog. This is my journey. However, I always hope that I help someone. I hope somebody can relate to this. I hope I can connect. But in the end I write for me. Today this blog is about me. Today I’m setting forth my intentions in a contract to myself. I wrote a blog not too long ago that me and my issues…
This is a lot of copy and paste of words we hear as patients with multiple sclerosis. I got this off of ms lifelines seen here http://www.mslifelines.com/ms-terms I wanted to create a quick reference place for some of those terms we hear not only for me, because I forget, but for anyone else who needs it. This is a selected list off of http://www.mslifelines.com/ms-terms ms lifelines. Ataxia Lack of coordination and unsteadiness that result from the brain’s failure to regulate the body’s posture and…
My daughter stepped on the scale and was 5-6 pounds lighter. My daughter, who is normal and not obsessed with the scale as her mom, doesn’t weigh herself often. She has no reason to, she’s very thin, looks wonderful in everything, she’s 17. Her mother, on the other hand, has finally learned to limit herself to once a week. However when her daughter weight was so low, I needed to check the scale myself. It was the same as four days…
