ive told the story in past posts about my parents and the pain my MS has caused them. To watch your child hurt and suffer when you stand by helpless is the worst feeling for a parent. I know my disease has repeatedly broken my parents (all 4 of them) hearts at various times through the years. I’ve had challenges with my daughter too. She was born with a progressive hearing loss. It is called EVAS, enlarged vestibular aqueduct syndrome. Her…
Normally I go on a first date and I’m pretty nervous. I spoke to this guy twice on the phone before our date for an hour each time and the conversation always went really smooth. If you read my post yesterday you know that I wasn’t overly nervous going on this date. I have course arrived early as I always do because I have yet to be late for anything plus I want to make sure I can park so…
Did I ever make a post for part one? Not even sure. But I know I’ve had a lot of posts about dating and here’s another one. I’m going on a date today actually in a couple hours but this one I’m looking forward to. This is a gentleman from match.com. He actually reminds me of a good friend of mine that I met on match.com probably nine years ago already. We went on one date to a Paul McCartney…
*** this exercise was from a book I read return to love by Marianne Williamson that I did previously when I read it I was recommended again to be done at my life coach so this part of the exercise is the letter that MS writes me in response to the letter I wrote yesterday. Dear Jamie, I’ve read your letter and I can hear the pain in your words. I don’t know why I chose you. I don’t even…
Dear Multiple Sclerosis, It’s been 18+ years you’ve been in my life. Your like that negative friend I can’t break away from. I’ve written this letter to you before but my life coach has asked me to revisit it because she feels that maybe I wasn’t fully honest in that letter. You see I try to put up a brave face. When the diagnosis came people were devastated around me and I felt I needed to be strong. It wasn’t…
I remember 18+ years ago being at that neurologist office when my entire left side of my body wasn’t functioning. I couldn’t really walk, I had muscle atrophy, numbness, weakness and gait difficulty. The doctor asked if anyone else in my family had MS. He knew before the MRI was even done. I sat crying in a chair as my mom leaned in front of me and said “everything was going to be ok”. We got in the car to…
The first time I contacted this group was about 10 years ago in hysterics. It was at the time my husband and I decided to get a divorce. Knowing I’d loose my house, I also thought I was going to loose my puppy. I remember sobbing and the really nice woman telling me, “you might find a place that will let you have him. We are here if you need us but I can tell that you love this dog,…
Yesterday was another lovely day out. Perfect weather, sunny not to hot just so pretty. That wasn’t what made it so lovely though, my youngest cousin came from the city and spent the day. Have you ever met that beautiful person that was just so genuinely nice and endearing? That is my cousin. She has the most beautiful smile that just seems to always be on. Just a completely genuine nice person on top of it all. I take all…
This picture took me 25 years to get. It was November 22, 2004 and U2 released How to Dismantle an Atomic Bomb. November 22 is my birthday. The did a lot of publicity on this one. The had an impromptu concert under the Brooklyn Bridge after they went around the city singing on a flatbed truck. I was one of the 1,000+ people who didn’t go to work and was at the Brooklyn Bridge for that concert. The next evening…
Sorry all you beach bums but I’m a a fall weather girl. I love the crisp air, leaves changing color, Halloween, thanksgiving, my birthday and my oversized yummy sweatshirts. I love the smell of cinnamon and apples, pumpkin picking, hay rides and pies. There is nothing about the fall I don’t love. This is my time of year always has been. I just have so many good memories of this time of year. My favorite picture of my daughter was…
