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Tag: Multiple sclerosis

Next level wheelchair

Next level wheelchair

Friday is here, another quick week. I have plans this evening which will mean I will be in recovery mode all weekend. It doesn’t take much for me to tire out although this wasn’t a terrible week considering all I did. I was out everyday doing activities. That is really big for me. This included my first day back into occupational therapy Dog tired occupational therapy hazard. I was exhausted after that but I was still out for game day…

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Mental exhaustion with MS

Mental exhaustion with MS

Question, do you snap at people when you’ve hit your limit? When all my energy is gone and I’m completely exhausted, I’m known to loose my patience. My fuse is short and I can snap easily. My daughter knows this all to well. It is just like my brain can’t handle anything else in that given moment and all my positivity and mental reasoning goes out the door. I wouldn’t say it happens often anymore but it does happen. I…

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Dog tired occupational therapy hazard

Dog tired occupational therapy hazard

Occupational therapy kicked my ass today. I knew my first day back would be rough but wow, that was super duper tough. He started with these tiny little beads I had to put onto a shape. He let me do this with my hands. How nice of him. I had a star shape. This consumed the first 30 minutes of therapy. Trying to put those teeny tiny beads on the teeny tiny holes with my left hand. I was only…

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A choice to exercise

A choice to exercise

Happy Monday. My aid just told me I look tired. I’m always tired. I can sleep for 24 hours and I’d still wake up tired. I just did my little cardio workout but i was tired. It doesn’t ever matter, I’ve just learned to push through the feeling as I have always done. I bought a treadmill way back when I was still married living in my house. It was used for a total of a month tops before it…

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How time flies

How time flies

I have an eye exam scheduled for Tuesday. My eyes have not been good. Things I’m reading are not clear and I find myself blinking a bunch of times to focus. Even with my eye glasses that are bifocals, I find they aren’t helping enough anymore. Last year my eyes had a slight change this year I feel that it is a major change. I might need to not only change my eye glasses but my sunglasses too. Got away…

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Life expectancy with Multiple Sclerosis

Life expectancy with Multiple Sclerosis

I was reading an article yesterday about the life expectancy of people with autoimmune diseases. https://health.usnews.com/health-care/patient-advice/slideshows/autoimmune-diseases-that-can-be-fatal. Of course there was a section dedicated to multiple sclerosis. This said on average life expectancy of someone with MS is 7 years less than the average person without the disease. I’ve heard this number before but it doesn’t make me very happy. My thought is why? Why would MS shorten our life span? Other than complications from the more serious symptoms of MS…

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Occupational therapy evaluation

Occupational therapy evaluation

So I went yesterday for an occupational therapy evaluation at the same place that I’ve been going to therapy for the past four years. However I only participated in OT last year. I never realized I could do both. When my insurance ran out last year I actually took a break for the first time. Normally when my insurance runs out I go on their maintenance program but this time I just decided to continue doing my own exercising at…

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I’m too tired for Monday

I’m too tired for Monday

I’m not sleeping well which is unusual for me. Sleeping has never been my problem. I can sleep all day and night normally other than getting up for bathroom breaks. Once in a while I deal with spasticity issues that plague my sleep. That can last for a night to a week to a month but that is sporadic and the medications I take at night normally do a good job preventing those episodes. I take baclofen, neurontin and flexeril…

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Getting to know a new bathroom floor

Getting to know a new bathroom floor

I knew I shouldn’t write that about falling. I was playing mahjong yesterday and we were actually playing here in my building. It was one of those days where I was just not holding up very well in the game and I was having difficulties keeping up right. OK, it happens. I wasn’t going to stop playing because I was so happy. I haven’t played in so long. my bladder has been really cooperative and I don’t normally have to…

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Still blogging in 2020

Still blogging in 2020

Year 2020, that’s crazy!! How was your first day of the New Year? I’m still here writing a blog to the internet. I love my blog, it is therapy for me, a way for family and friends to understand my daily life and a way to meet other bloggers and people. I should say this everyday, THANK YOU for reading, commenting and inspiring me to continue to write. I’m not a writer, actually English was my poorest subject in school….

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