I have to say this cold has kicked the shit out of me. I know taking Rituxan lowers my immune system but I honestly very rarely get sick. Even my issues in 2022 I was on Kesimpta, not Rituxan. The last cold I had was back in 2019 when I went on my last vacation. I went to Mexico with my family. I had the worst cold. I was miserable for the first 4 days of the week’s vacation. I…
My gastroenterologist called me the other day with one of my biopsy results. I didn’t expect the diagnosis but I also wasn’t shocked. Most people think heartburn with acid reflux. I really don’t have that issue, or at least I don’t think I do. I do have the feeling of smoking a carton of cigarettes upon waking up some mornings. Is that heartburn for me? I thought that was the MS hug. Sometimes my symptoms don’t make sense to doctors….
I am still dealing with all the little things, but I’m not as down as I was writing Monday’s blog. I can report that there is still areas I’m making improvements. Tuesday I was actually able to get up from sitting on the toilet seat. It was a “dry run” exercise with my occupational therapist. I was actually able to get up twice. I didn’t even use that seat that goes over the bowl to raise you up. I was…
Well another episode started off an otherwise lovely evening. My mom and stepdad were coming over for dinner and to watch Yellowstone. We missed last week’s episode so we were in for a double feature. It was just about 4:00 when I hung up with my mother. I was getting up to feed my puppies. I didn’t transfer to my wheelchair well. I ended up sliding down to the floor. When I got up I would have taken the increase…
It is Friday!!! I haven’t had a bad week even with my blue Tuesday. For the last few weeks in my game day my, with my friends in the building, we’ve been playing this game called Misery Index. It basically is cards that have certain bad things that can happen to you and you have to place them in order based on the cards you already have. Each card has a misery index number from.01 (a paper cut) to 100…
My neurologist and I decided we were going to switch to Kesimpta by my next infusion date. https://multipleexperiences.org/2021/04/26/possibly-switching-to-kesimpta/. My doctor wanted to start the process in July although my next infusion date isn’t until September. We entered the prescription into the pharmacy to start the process. It was less than 24 hours later that I received the denial from my insurance. The denial reason was that this medication wasn’t necessary and there may be other medication that can met my…
My neurologist has joined one of the big group hospital networks as most of the doctors on Long Island are forced to do. I’ve been with him for 23 years. Everyone in his office knew me. It was originally his first wife, who unfortunately passed away, and another secretary. They added an additional bookkeeper when his wife got sick about 15 years ago. It has been the same staff all these years. I could call up and say hi it’s…
I have been fighting migraines since Saturday. During my teleconference with my neurologist he informed me that my insurance company was no longer going to cover my Relpax prescription. These are the pills I take when a migraine gets really bad. My prescription fills at 6 pills per month under the generic version Eletriptan. They gave my doctor two other options to try. The first one he gave me was Rizatriptan. A dissolvable pill that you place on your tongue….
So I went to the podiatrist. As soon as he looked at my feet the first words he said was your feet are swollen. He asked if I could possibly have Raynaud’s syndrome, have I seen a vascular doctor? Oy-vey… I knew the swelling isn’t normal but another doctor. He said the good news is I feel the pulse, that means that the blood is in there still circulating through my feet. However, he said this is the circulatory issue…
I slept in this morning. It was nice. I think even my dogs were still tired because both of them remained snuggled up next to me in bed. I woke up again with a headache. The good news is is that regular aspirin helps and then it goes away, the bad news is that I think this is my fifth or sixth day waking up with a headache. This time I think it’s a little more weather related because it’s…
