Good morning and happy hump day to all. Got through the day of exhaustion from therapy yesterday. At least I had a justifiable reason for being fatigued. I even made it to my hair appointment and no more grey hairs, at least for the next 5-6 weeks. My wonderful hair dresser, who is also a good friend, even blew out my hair for me saving me a step so I didn’t have to deal with it myself. I’m almost due…
First an update from the blisters and Rituxan Blisters and Rituxan. Doctor wants me to start washing all my clothes in free and clear detergents. I really could have called that one. She wants to rule out allergic reaction to any detergent regardless how long I’ve been using it. I get that understandable but the bras I’ve been wearing lately are actual bras. Like with the clasp bras. Bras I gave up on years ago because my hands can’t do…
I am at my doctor’s office for an appointment that has been canceled twice. Checking on those blisters that are still appearing under my breast. Blisters on breast. Allergic reaction to Rituxan. Originally deemed an allergic reaction to Rituxan because they appeared within hours of doing the infusion, they are still appearing. My neurologist was the only person who didn’t think it was a reaction to Rituxan even though it said specifically on the Rituxan site: https://www.rituxan.com/patient/starting-rituxan/rituxan-safety-information.html Severe Skin and…
Bubba is back. Bubba is the name I gave to my handicap van. He’s a big boy so Bubba seemed fitting. Turned out it only needed a battery. Good to know that even as the battery dies the ramp still works. Well $200 later he is fixed, sort of. The back sensors that were installed when I bought the car aren’t working. I asked the place that was fixing the car to fix those too but they can only be…
So I’m sitting at my doctor’s office because those open sores on my breasts went from 3 to 4 as of this morning. Couldn’t picture the 4th spot Ouch. I didn’t even want to get out of bed today let alone sit at my doctor’s office but I have to check it out. I did learn it starts as a blister that pops and oozes. My aid pointed that out with the gauze pad attached to them. Just another thing…
I have had terrible headaches for three days. Since I have migraines already, I don’t know if the Rituxan made them worse or if it was caused by the infusion but they were bad. I have migraine medicine and I did have to take it. Thankfully I have it because I was in bad shape. Yesterday I took Ibuprofen every 3 hours. It’s been rough. Forgive my brief blog post with my quick update but I’m doing better but still…
I had to be honest and let others know in case it happens to you, I haven’t been feeling great since my Ocrevus infusion on Wednesday. I expected the day of the infusion to feel lethargic and tired because of the Benadryl coming through the IV, but I am still feeling that way. It is Friday morning and anyone with MS will understand me when I say my bones feel so heavy. My skin is super sensitive which is definitely…
This was the second most popular blog of the year on http://Www.multipleexperiences.org. I was on Rituxan for over a year and would have preferred to continued however for insurance reasons, I’m changing to Ocrevus. My first infusion is scheduled for August 7th. This blog is just a good inside look at the pharmaceutical world of chronic disease. I decided to go a little honest about our pharmaceutical world of MS. There has been so much press and promise over this new drug…
Let me first address the fact that it took an hour and 45 minutes to get into the city for my check up. That means I’m doing nothing for all that time. I was her first appointment that morning. When we do my neurological checks and timed walking, I’m at the best I’m going to be. Therefore the check up is based on this point. However how realistic is it? This is the first time I was her first appointment,…
During my treatment yesterday, there was a man sitting next to me that I started talking to. The conversation started after he had to take a phone call and felt bad that he thought he was disrupting his neighbor. He apologize for the call and explained his brother-in-law was going in for triple bypass surgery today. He was sitting next to me getting Chemotherapy. I politely explain no need for apologies, I totally understood . From there we…
