Going to see my neurologist, on my mind was questions of whether to stay on Ocrevus. I felt if I was still declining so much why be on a drug that can come with some serious side effects. Was the pros still out weighing the cons. I had two other drugs in mind Siponimod and Ibudilast. Both drugs are coming out for secondary progressive. My neuro shot down Siponimod because I was on Gilyenia and it is very similar to…
If your doctor has suggested Ocrevus you are certainly moving up the ladder of disease modifying drugs for multiple sclerosis. With each of the IV drugs especially come side effect risks. Ocrevus is no exception. The most serious they show is: Risk of cancers (malignancies) including breast cancer. Follow your healthcare provider’s instructions about standard screening guidelines for breast cancer. That’s a pretty serious risk to consider. They also talk about PML Progressive Multifocal Leukoencephalopathy. This is the brain infection caused…
https://www.medicalnewstoday.com/articles/323006.php New multiple sclerosis culprit identified It is still unclear what causes multiple sclerosis, but new research closes in on the faulty immune system mechanisms involved in the development of this condition. New research has identified another type of immune cell that may play a role in MS. Multiple sclerosis (MS), which is an autoimmune disease, causes the immune system to mistakenly attack myelin. Myelin is the substance that coats axons, which are the projections that allow neurons to connect…
Continuing on with my original post I wrote the other day https://multipleexperiences.org/2018/08/15/flu-like-symptoms-while-im-swimming/. I had one comment from another person with MS. She explained that any time she over exerted herself she had flulike symptoms as well. Thank you Priscilla for your comment. She even said if she continued overexert herself she can actually come down with the flu. I asked her what drug she was on for MS, if any, and she was taking Rituxan. I am currently on Ocrevus…
I’ve been asked this question quite a number of times so I thought I’d address this in my blog. I’m asked, do you feel any better since you’ve been on Ocrevus? Where I’d love to give a wonderful answer here, the answer is NO. however it’s also very important to answer, I also don’t feel worse. When I was on Tysabri, I was still feeling worse month to month. That’s why we made the switch originally to Rituxan, which is…
Over 20 years I have been on many different drugs. I’ve stop taking things and started taking things. There are many drugs I’ve taken for the MS itself and many for its symptoms. I figured I list all the things I take right now from my MS. I’ve also included links to clinical trials and a couple of drugs I recently stopped taking. Ocrevus this is my main drug for relapsing remitting MS. I take it through an IV once…
When i’d have an MS relapse, I would take 1000 mg a day in an IV for four days. Then you would’ve taper off from that thousand milligrams to an 80 mg pill three times a day and continue down to a 60, 40, 20 etc.. To me, that taper, always still made me sick because going from that 1000mg to 80mg was such a huge jump. My body would always have the steroid withdrawal anyway so I stopped doing…
Leaving behind all the BS that got me to the second infusion, let me finally talk about the infusion itself. Unfortunately it wasn’t the full dose of 600 mg. This specialty pharmacy ordered 300 mg so in two weeks I’ll be back again to take the other half. This is the way you would start Ocrevus. The second infusion was supposed to be a full dose. However, the infusion is basically the same. After they find a good vein for…
(CNN)In a rare move, the companies that make the multiple sclerosis drug daclizumab (brand name Zinbryta) have voluntarily pulled the medication from the market and stopped all clinical studies after reports of eight cases of serious brain inflammation among patients in Europe Read the full article here: https://www.cnn.com/2018/03/02/health/ms-drug-daclizumab-pulled-bn/index.html Each one of the drugs we take to keep as well, has side effects. You have to weigh the odds, the pros and cons of each of these medicines. I’ve been taking…
It’s 20 years that I’ve dealt with my multiple sclerosis. When I first started doing research on my own illness, it was stated that most people go into the second stage of the disease after about 10 years. The second stage of the disease being secondary progressive MS. Most people start off in relapsing remitting and, at the time, it was said that 80 percent of people in this stage will go into secondary progressive around that 10 year mark….
