What am I taking for Multiple Sclerosis

What am I taking for Multiple Sclerosis

Over 20 years I have been on many different drugs. I’ve stop taking things and started taking things. There are many drugs I’ve taken for the MS itself and many for its symptoms. I figured I list all the things I take right now from my MS. I’ve also included links to clinical trials and a couple of drugs I recently stopped taking.

  • Ocrevus this is my main drug for relapsing remitting MS. I take it through an IV once every 6 months.
  • Biotin 100mg 3 times a day. https://multiplesclerosisnewstoday.com/2017/05/09/medday-new-phase-3-trial-and-belief-in-biotin-potential-to-treat-progressive-ms-interview-with-frederic-sedel/. There has been positive results in clinical trials for this with progressive forms of MS. Since I am considered in both secondary progressive MS and relapsing remitting MS, I was put on this well over a year ago. I completely believe this has made a difference. You can get the high dosage through a specialty pharmacy. I use ace pharmacy https://highdosebiotin.net/?gclid=EAIaIQobChMI4feQ3eXh2QIVl0sNCh3rNQh_EAAYAyAAEgJ_d_D_BwE
  • Oxybutynin used for an overactive bladder. Helps with the urgency of going to the bathroom and the MS issues associated with that.
  • Stool softeners 2 times a day to help with the lack of muscle control in that area due to MS
  • DoTerra Vitality Pack a multi vitamin, cell support and omega pack that has given me increased energy as well as helping me sleep. A definite game changer for me.
  • DoTerra Probiotic. I learned the importance of a healthy gut.
  • Topiramate used for my migraines which is thought to be possibly caused by the swelling of my lesions in my brain. I take 75mg a day.
  • Cyclobenzaprine the generic for Flexeril a muscle relaxant for the spasms I get with MS. I take 2 pills before bed. Helps me sleep too.
  • Baclofen also for muscle spasms. I can take these throughout the day as needed but always take one pill at bedtime.
  • Gabapentin generic for neurontin used to treat neuropathy pain and restless leg syndrome. I use it for the twitches I get. I also can take this as needed but take at least one at bedtime or I’d twitch all night long.
  • Prozac used for depression. I’m on 20mg and have been for 20 years. I stopped for a year and realized I cried over everything. When I started taking it again my mood settled. I originally was prescribed this to offset the side effects of depression from Betaseron.
  • Relpax as needed for severe migraines
  • Simvastatin usually prescribed for high cholesterol but not for me. A clinical study was done finding promise for progression with the disease. https://www.ncbi.nlm.nih.gov/m/pubmed/25795002/. I have recently stopped taking it because of weight issue. Taking this drug and gaining weight seem to coincide. I am seeing what happens for a few weeks.
  • Alpha Lipoic Acid another clinical trial was done but this vitamin https://multiplesclerosisnewstoday.com/2016/09/19/ectrims2016-antioxidant-lipoic-acid-may-slow-spms-neurodegeneration. I was on this for again almost a year. I recently stopped because of all the vitamins I’m taking but doTerra. I really didn’t see much of a difference taking this or not taking this.

I hope you find this list useful. I actually am bookmarking it myself for when I go to the doctor I have a list of my medicines.

5 thoughts on “What am I taking for Multiple Sclerosis

  1. Hi Jamie, really useful to see what you are taking. Can I ask about the biotin? How do you feel it has helped? I was on it for a few months but kept progressing, so stopped. At the moment, I just take baclofen, vit D and B vitamins

    1. Jen, I don’t think it had a huge impact, but the impact it supposed to have is to help slow down the progression. So it’s not something that’s going to make us better it’s going to help slow down the progression of our disease. I mean technically I walked faster by seven seconds. Of course that means nothing to us in the scheme of things when we really can’t walk but if I was in a true clinical study that would be considered a positive result. Since there’s really nothing out there for secondary progressive and I to keep getting worse, I think this is just giving me better good days when I have the good days if that makes sense? I feel it’s a vitamin and It can’t hurt. Many of my MS friends feel it helps with neuropathy and with heat tolerance. One of my MS friends says she walks so much better since she started taking shell never not take it again.

        1. Truthfully almost 4 months but some say even 6 months. It is very subtle. It didn’t have a smack in the face kind of feeling for me but I know it has done something good.

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