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Tag: biotin and ms

High dose biotin can throw off thyroid function tests

High dose biotin can throw off thyroid function tests

I received a call of alarm from my primary physician on Saturday night at 9pm that my thyroid number was extremely high. Showing evidence of hyperthyroidism yet none of my other tests or symptoms showed any evidence of this. Since I was due to take my Ocrevus infusion the next day, he felt I should possibly put it off. He wanted me to repeat the blood test first thing Monday morning and they were going to get me an appointment…

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Update on the European withdrawal on high dose biotin application

Update on the European withdrawal on high dose biotin application

As promised it was the first question I asked my neurologist. She explains that the study had 93 people in it. According to the study, over the course of a year, of the 93 people enrolled something like 20 of them had relapses that I never had a relapses before. That’s why they deemed that the high does biotin was not effective. This is the information on the application for the withdrawal. http://www.ema.europa.eu/ema/index.jsp?curl=pages/medicines/human/medicines/004153/wapp/Initial_authorisation/human_wapp_000247.jsp&mid=WC0b01ac058001d128. Well my doctor explained that she, as…

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Combo pill offered for high dose biotin and alpha lipoic acid

Combo pill offered for high dose biotin and alpha lipoic acid

I was informed by my friend that my pharmacy now makes a combination pill. It’s the same three pills a day, but it now has in addition to the hundred milligrams of biotin, 400 mg of the Alpha lipoic acid. You can click on the pill bottle on my webpage or you or you can click on the link I provided below. https://highdosebiotin.net/ Alpha lipoic acid has been studied to help in secondary progressive MS. https://www.mssociety.org.uk/ms-research/treatments-in-the-pipeline/lipoic-acid Studies in animal models…

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Application for high dose biotin (MD1003, Qizenday) withdrawn from European Market

Application for high dose biotin (MD1003, Qizenday) withdrawn from European Market

I found this article that in December of 2017, the application for high dose biotin has been withdrawn from the European market. https://www.mstrust.org.uk/news/news-about-ms/high-dose-biotin-withdrawn-european-licensing The European Medicines Agency (EMA) has been examining data on high dose biotin (MD1003, Qizenday) since the application was accepted in September 2016. At a meeting last week, the EMA’s Committee for Medicinal Products for Human Use (CHMP) concluded that the clinical data from two trials that enrolled 253 patients was not sufficient (link is external) to…

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What am I taking for Multiple Sclerosis

What am I taking for Multiple Sclerosis

Over 20 years I have been on many different drugs. I’ve stop taking things and started taking things. There are many drugs I’ve taken for the MS itself and many for its symptoms. I figured I list all the things I take right now from my MS. I’ve also included links to clinical trials and a couple of drugs I recently stopped taking. Ocrevus this is my main drug for relapsing remitting MS. I take it through an IV once…

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Multiple Sclerosis drugs, vitamins and therapies

Multiple Sclerosis drugs, vitamins and therapies

I kicked ass this morning. New workout and I stood on my feet for a record of 18 minutes. Omg!!! That’s incredible. Granted my feet can’t move too much, but that’s ok, that was an tremendous amount of time. In physical therapy, one of the main things they do for people with multiple sclerosis, or people that can’t really stand on their own anymore, is put them in a device that either stand them up or strap them in bars…

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Biotin, dating, Ocrevus and me

Biotin, dating, Ocrevus and me

It’s been a strange couple of days. I’m finally able to start taking my high dose biotin again. If you read any of my other threads on biotin, and there are many, what mostly showed in the biotin is that my walking speed increased by seven seconds. This is according to my neurological test by my doctor. However I’ve stated, and I still stand by, that biotin helped do more. Besides noticing more weakness in my legs and hip area,…

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Biotin a year review

Biotin a year review

If you’ve never read my blog before, I invite you to look through the search box and find my numerous posts on biotin. If you don’t want to take my word, this is an article from the web with the doctor who has been conducting the clinical studies on high dose biotin in multiple sclerosis. https://multiplesclerosisnewstoday.com/2017/05/09/medday-new-phase-3-trial-and-belief-in-biotin-potential-to-treat-progressive-ms-interview-with-frederic-sedel/ My MS doctor had read the notes on the clinical studies and started me on biotin back in December of 2016. With biotin being a…

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Neurologist check up day, NYC specialist

Neurologist check up day, NYC specialist

Going to the neurologist are usually a bittersweet day. I really like my neurologist in the city, she is a wonderful doctor. I honestly couldn’t ask for more compassionate, caring and understanding for MS.  That being said, there’s limits to what could be done for me. Since seeing her regularly I’m on my third MS drug that I started back in September, which is Ocrevus.  I can say that I was on Rituxan prior to this and the changes only…

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High dose biotin for MS

High dose biotin for MS

High dose biotin, I’ve discussed this product many times on my blog. In an article on medical news today http://www.medicalnewstoday.com/articles/315193.php Several studies on the use of biotin as a treatment for people with MS have shown positive results. One study found that people with MS who had taken high doses of biotin, reported reduced pain and improved energy levels. A French study showed that people with MS who had been treated with biotin found that their vision had improved. Scientists in Canada…

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