Over the years, a repeated cycle has always occurred when I went to an appointment with my neurologist. I would see him and a week later I would have some sort of MS problem. I would up either back at his office, on steroids or at an MRI usually all 3. Over the past week I’ve been waking up feeling like I smoked a pack of cigarettes the day before. I’ve had this feeling before but never knew what it…
Most doctor’s do two rounds two weeks apart and then you repeat every 6 months. It will be the same senario as when I posted the first time https://multipleexperiences.org/2017/01/16/rituxan-infusion-day/. I feel bad for Zoey, the 5 month old puppy, today because no one is around and she has to be in her crate for 6+ hours. I feel bad for me because Zoey will have a lot of energy when I get home. Maybe it’s Marshmellow, my 8 year old frenchie,…
Unfortunately, I have not escaped side effect free from my Rituxan infusion on Monday. However it’s not the Rituxan that is the problem it’s the steroid, as I figured it might be. Definitely not as bad as last time but I definitely don’t feel well. So instead of a long blog I got humor this morning with my puppy Zoey that I thought I’d share. Zoey loves socks doesn’t matter if they are on your feet or not. This morning…
Third time I’m being infused with Rituxan. I was able to change my infusion place back to my home town instead of NYC. Saves at least 3 hours of the day. I got here at 9am and it’s 9:57 IV is just beginning. Why an hour? Well they didn’t get the doctors orders. Now it is a federal holiday today so getting in touch with the doctor wasn’t going to be easy. Her office at Mount Sinai in NYC is…
I was starting to “leak through” my current multiple sclerosis therapy back in 2014. I had been on basically Betaseron most of the time until I switched to Gilyenya in 2010. I was switched for the “leaking through” thought. It was holding me on the relapsing remitting sides mostly. I’d have maybe one or two per year on all the drugs. However I would worsen without a so-called attack. My current symptoms would worsen. Back in 2014 the decision was…
Wow I was going fast into depression the medicine the braces the $130 for shoes I hated the bad phone call with mom. I just was so upset cried for hours straight. It just compounds on you sometimes but now add steroids into the mix and presto recipe for a bad situation. I can’t believe how bad I felt yesterday I really just wanted to give up something that has never been in my nature. I slept all day today…
Ok first mistake I made I stepped on the scale. I have one of the Fitbit Aria scales. It registers my weight by my name. The increase was so great from my Friday weigh in that the scale listed me as a GUEST because how in 2 days could a change that great happen, but it totally did. 12lb increase from Friday morning to Sunday morning. 12lbs THAT’S FREAKING INSANE. I know it’s not real weight it’s from the infusion…
