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Author: Youtwohearts

A day in the life with multiple sclerosis.
Multiple Sclerosis Glossary of terms

Multiple Sclerosis Glossary of terms

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This is a lot of copy and paste of words we hear as patients with multiple sclerosis. I got this off of  ms lifelines seen here http://www.mslifelines.com/ms-terms  I wanted to create a quick reference place for some of those terms we hear not only for me, because I forget, but for anyone else who needs it. This is a selected list off of http://www.mslifelines.com/ms-terms ms lifelines. Ataxia Lack of coordination and unsteadiness that result from the brain’s failure to regulate the body’s posture and…

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I have issues

I have issues

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My daughter stepped on the scale and was 5-6 pounds lighter. My daughter, who is normal and not obsessed with the scale as her mom, doesn’t weigh herself often. She has no reason to, she’s very thin, looks wonderful in everything, she’s 17. Her mother, on the other hand, has finally learned to limit herself to once a week. However when her daughter weight was so low, I needed to check the scale myself. It was the same as four days…

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Am I depressed?

Am I depressed?

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I have to be honest, I’ve been asked this more than once by family members, doctors and friends. For probably 15  of the 19 years I have MS, I was on Prozac.  I think in my 20s I was miserable for many reasons, especially when I got my diagnosis. However, the main reason for Prozac was because Betaseron, my MS therapy drug, had the side effect of depression.  It’s like you take a drug, but then you need something to…

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Up all night and it wasn’t a party

Up all night and it wasn’t a party

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ALL NIGHT!!! I may have slept for twenty minutes at the most. I know at some point my dogs started playing with each other like it was the afternoon. One of them was sick, I was cleaning up my floor at wee hours of the morning. I was crying because when I’m that tired and can’t sleep I get very frustrated and cranky.  I can’t take not sleeping. It’s just the worst thing that could happen t me. It’s this…

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Vegan fudge for Mother’s Day

Vegan fudge for Mother’s Day

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Happy Mother’s Day to everyone. Whether your child has two feet, three feet, four or eight, If you’re a mom then happy day to you. Recipe found on fearless fresh https://fearlessfresh.com/perfect-raw-chocolate-fudge/ She writes: This raw vegan fudge is the ultimate in decadence, only there’s absolutely no dairy or refined sugar in it. A guilt-free treat that you can indulge in all you want. Adapted from Sunny Raw Kitchen. The recipe: INGREDIENTS 1/2 cup coconut oil 1/2 cup cacao powder 1/2…

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Rewriting a story I believed for most of my life

Rewriting a story I believed for most of my life

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When I was 16 or 17 years old I went to a psychic, the only thing I remember, and unfortunately I’ve always lived by, she told me I won’t have a lot of friends but the few that I would have will be true friends. I remember thinking  that’s good I’ll have true friends for the rest of my life. At 16 and 17 when girls were still backstabbing each other I thought that was a pretty good thing. As…

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Social security disability doctor evaluation not what I thought….

Social security disability doctor evaluation not what I thought….

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I spent the morning in the doctor’s office for my daughter. I had a 9:00 appointment and wasn’t seen until after 10:00. It wasn’t because she was sick. It wasn’t because we needed to run tests. It wasn’t even an appointment made at our request. It was made because social security required an outside doctor to meet with her for her social security disability application. I thought it was odd, my daughter is deaf, she has prosthetic hearing in the…

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Perseverance, persistent or just plain stubborn

Perseverance, persistent or just plain stubborn

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I don’t know which one I am take your pick. If you haven’t read my post for the last couple of days, I had an incident. I slid to the floor and I wasn’t able to get up.  One of the culprits could’ve been the fact that I increased one of my medicines, Gabapentin which is the generic form of Neurontin, due to the pain in my shoulder from tendonitis. I increased it on Sunday, and the incident happened on…

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Yesterday was a very disheartening MS day explanation

Yesterday was a very disheartening MS day explanation

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First I want to thank everybody. I had a lot of support from a lot of people and I can’t say how much it meant to me.   There were a few contributing factors that went into yesterday that I wanted to explain. First was my mood. I was very stressed over an email I got the night before about my daughters housing for college. Her housing agreement had to be signed and returned to the school within five days…

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Today was a very disheartening MS day

Today was a very disheartening MS day

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This one is not for my family. This is a bad one, so I give you the advance warning.  Everyone’s been telling me I’m doing too much.I am a little stubborn about slowing down. I  been having a lot of trouble at physical therapy lately. I had been fatiguing not just a little but severely and I don’t know why. It’s the same routine I had been doing since November. Luckily, I had my daughter around when I got home to…

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