Well you can get Covid even after you’ve been fully vaccinated. My poor sister has been feeling awful this past week. She tested positive for covid. Like so many people, me included, we’ve gotten a little lax with the mask. I don’t think the vaccinations are lasting as long as they originally thought they would. I got my booster already and I would prefer not to be doing that every few months. I do think that the vaccine need more…
Once again my brother is training for his 50 mile bike ride for multiple sclerosis. Each year he does this fundraiser in my name. Raising money riding a bike, something I’ve been unable to do for at least 8 years. Please help us find a cure for all of those who suffer daily but are still warriors. https://www.facebook.com/donate/157731676220745/?fundraiser_source=external_url Why We Want to Create a World Free of MS It’s now 13 years ago when I said I wanted to ride…
When your day starts off with an accident and a fall, you aren’t feeling so optimistic for a good MS day. Yesterday evening was my second Kesimpta shot. I decided to once again do my thigh region. I did my right leg this time. That might not have been the best place. As soon as the needle pierced the skin, my leg immediately went into a super spasm. I twitched and moved during the injection. It hurt. I know that…
After all my worries over changing to Kesimpta, I’m now pretty darn happy I did. I felt fine after the shot on Thursday and all through the weekend. To not have to do a six hour infusion followed by 3 plus weeks of feeling lousy, I have to say I’m pretty excited. No more steroids. No more IV vein issues. No more aggravation with the former pharmacy over the correct infusion supplies. I must say that is a win, win,…
I was all set to write about something else today but I had a dream that just pissed me off. It was about my ex boyfriend. He has been my ex boyfriend for almost 6 years. He is actually married and a stepdad living in another state. Ok, big deal I had a dream about him. Once in a while wouldn’t be a big deal but I always dream about him. I always think about him. I hate him and…
I started getting freaked out reading other people’s first shot reactions on the Facebook Kesimpta group. I thank Sherry for commenting on my Kesimpta delivery blog and telling me about the group but it didn’t help my nerves. Thankfully, I had a video conference with my neurologist yesterday. She explained Kesimpta is nothing like the interferon shots that I took for the first 12 years. The shots that still give me those horrible flashbacks that are causing all this fear….
It is Rosh Hashanah today, the Jewish New Year. I am actually participating with my family and going to my brother in-laws family. I have to admit, I haven’t been doing the big Jewish family dinners lately. My brother in-law’s family have been opening their home to us for the past 15 years. They are wonderful people. I think, for me, part of what makes it slightly difficult is one of his cousins has multiple sclerosis as well. She is…
I got a call yesterday from the pharmacy about the delivery of my new medication, Kesimpta. I am being mailed 3 doses for my first month. I take a shot weeks 1,2 and 4. From there it will be once a month. The shot is recommended to be in my thigh, stomach or upper arm. All the memories of the years of Betaseron come flooding back. Betaseron was my main MS drug until Gilenya, a pill, came out. 12 years…
Good morning to all. It’s September 1st and I’m doing my happy dance. I made it through another summer. I want to be the kind of person that has a summer place where it is cooler like in Alaska or Iceland. Someplace I can retreat to during the hit and humid months in New York. I don’t think that’s an unreasonable accommodation. Im not a beach person although I love to gaze out over the water. I just love views….
I’ve been trying to focus on other things going on with my body besides just a number on a scale. I purchased a HEALBE watch. I wear that on one wrist and still wear my Apple Watch on the other. It is a little odd but the HEALBE gives me insight into different things. I can talk about every line of this watch, because I’ve learned a lot about how my body is truly functioning throughout the day, but it’s…
