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Author: Youtwohearts

A day in the life with multiple sclerosis.
When life gives you lemons

When life gives you lemons

Not one of my better weekends. The humidity picked up significantly here and my body instantly felt the difference. I had a headache all day yesterday coupled with general weakness. Just made for a very tough day. I didn’t sleep well and of course that never helps. They’ve already started setting off fireworks around me. I learned that Minx HATES the noise they make. I can only imagine what he will be like as we get closer to July 4th….

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Happy Birthday Mikayla

Happy Birthday Mikayla

Another year has gone by and my daughter is a year older. 22 years old, do you remember being 22? Part of me feels like it was yesterday and the other part feels that it was so long ago. It was 27 years ago to be exact. She is 22 which is the age I met my husband. Five years from now I’d be giving birth to her. It’s crazy to think that she is starting her life. She graduated…

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Spring cleaning

Spring cleaning

Good morning world. I’ve been a busy beaver. Now that I’m feeling better I went back to cleaning. Yesterday I took on my nightstand. This is partly due to the fact that some of the items I would normally put in these draws have been thrown up on my computer desk. A not so steady area on a good day. This is also a place in my room I hit with my wheelchair weekly. To my own defense it is…

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Upright walker

Upright walker

Yes it was definitely more expensive than other walkers but keeping you in the upright position is HUGE. I was exhausted by the time I got it together yesterday and even with my heavy, difficult steps, I knew this was the right purchase. It is such a difference because you are standing straight. In the MS Gym we work everyday on BGB, butts, guts and blades. Keeping your butt tucked, your stomach in and your shoulders back to give you…

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Better but exhausted

Better but exhausted

Better today but still so tired. I went into bed at 8 last night and got out of bed after 8 this morning. Today is the first day I’m drinking coffee. Hopefully that helps. However I can feel already my body is exhausted. I did a very simple 30 minute workout because I have a few things going on today and didn’t want to overdo myself. Yet I’m sitting here exhausted. This is not good. So much has gone on…

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Rough day

Rough day

Rough day yesterday. I didn’t feel well when I woke up in the morning. I didn’t pay attention. I did my normal routine and was working out when Minx started eating something he shouldn’t. I reached down to pick up my grabber, which I myself knocked over, and literally fell out of the wheelchair. I got myself right back up but was unable to turn around and get myself back into the wheelchair and slid down again. My body was…

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I have multiple sclerosis

I have multiple sclerosis

I have multiple sclerosis. Sometimes this disease makes it so difficult. I pray for a day that everything wasn’t so hard. Yet one day I’ll look back at days the way I am now wishing I could have these back. That’s the thing, I know in time, it will be worse. That’s a truly sobering thought, knowing for sure my MS will be worse. People ask how I have such a positive attitude, with the real knowledge I live with,…

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Mikayla’s graduation

Mikayla’s graduation

My beautiful girl graduated. I cried because I was just so proud of her. It was a beautiful day. We had such a wonderful time. I really think we all helped her feel so special as she deserved to feel.

Choking on liquids

Choking on liquids

I had 2 choking episodes yesterday. Maybe choking isn’t the exact word because I really just swallowed wrong. The first one was mangos. Cut up in small pieces but slightly hard and very tart, just the way I like them. I swallowed wrong but it wasn’t the actual mango that was causing the problem. The tartness of the piece in my saliva is what I swallowed incorrectly. It caused me to cough, as it should, however I couldn’t move that…

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Weight and weight of the scale

Weight and weight of the scale

I spent 6 hours at the hair salon the other day. I had my hair straightened. A long process but worth the time it takes. I will not have to worry about doing my hair all summer. Shower, let dry naturally and it comes out perfect. That takes a tremendous amount of pressure off me not having to worry about my hair. Anytime I can clear something off my plate, I take it happily. The only thing is the straightening…

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