I had a nurse evaluation yesterday for the agency. Nothing shocking, mostly paperwork stuff. My medications were listed for the dosage and times I take them. I’m taking 9 different medications at 48 years old. That’s a lot of pills. If you include the vitamins it’s 17. A crazy number yet they all serve a purpose and that’s what the evaluator and I were discussing. Most I take at night because they cause drowsiness so I got the warning about…
Everything worked out with the agency. They found an aid to cover the days that my normal aid is out. She is very nice and the dogs are fine. Thankfully it’s all good. I just didn’t sleep well last night. I woke up at 3am and really never fell back asleep. I was sweating all night too. Of course I was wearing a white T-shirt that my hair color has now dyed red spots on. I should have turned my…
Good morning, happy Monday. I’m definitely on the recovery side of things and I’m so grateful for that. I’m hoping to play mahjong for a little today with the ladies in my building. I might not be able to play all day but I’ll be thrilled if I can get through a few hours. I canceled therapy for tomorrow because without an aid with me I am worried I’d be too fatigued on my own. That leads me to today’s…
I’m back with an agency and as of 5pm Friday they had no one for me on Monday. We are off to a great start. They told me it’s because of my dogs. They have difficulty placing aids in households with animals. Well I’m not giving up my dogs so if I have to change agencies 100 times, so be it. I’m sure my current aid, whom I love and done all this stuff for, won’t be taking time out…
Day two of waking up and not feeling tired. I can’t even put into words how great that is. I am starting to feel more like myself. I still was in bed by 8 yesterday and sleeping before 9. I also had no strength in my legs and had to transfer directly from my wheelchair to my bed. Yet all that is ok because I woke up peppy and smiling. I woke up in good spirits with energy and it…
Today is the first day I woke up not feeling tired. It was such a wonderful feeling. I haven’t had that in so long. I can’t say how the rest of my day will go but for all my bitching lately it was nice to start off my blog with some good news. I still canceled playing mahjong today. Unfortunately I knew that I probably wouldn’t have the stamina to last too long. However I still worked out. I even…
What can I say. I’ve been like a lump on a couch. I showered today, go me!! I’m exhausted 😴. I was exhausted when I woke up. My eyes feel swollen after I slept for almost 12 hours. How much more can one person say about fatigue? I’ve done nothing so I have nothing to blog about. I can tell you I’m tired of people saying me too. Anyone with multiple sclerosis or chronic illness knows there is a huge…
Still unfortunately feeling shitty. Once again canceling activities. The good news is I’m sleeping better, that really helps. Of course I’m a few weeks away from my infusion of Rituxan which had issues last time.Whether the issues were actually caused by the infusion or not, we still don’t know, but my concern is there to say the least. https://multipleexperiences.org/2019/09/17/blisters-on-breast/. Not to mention you always feel somewhat fatigued after you do the infusion so the whole thing has bad timing. I…
This is week two that I am am starting cancel my activities. The extreme fatigue has not left nor given relief. My prescription has been changed from Adderall to Provigil but the pharmacy had to order the drug. It should be ready today. I found a bottle of slightly out of date pills in my medicine cabinet so I started taking them as of Saturday. Unfortunately, it hasn’t helped. I’m hoping it is just because they are out of date….
I use to love being on the boat with my dad. I loved the water being free like that with the wind blowing in your hair. If you love the water you know that feeling I’m talking about. I missed that feeling for a long time until I got on the back of a motorcycle. God I loved being on that motorcycle. This was the one thing I only did with one ex boyfriend and something I’ll never do again….
