It never ends…Ocrevus infusion postponed continued

It never ends…Ocrevus infusion postponed continued

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So yesterday morning I’m sitting here and I get a call from my insurance that the expedited review for ancillary services, a.k.a. the infusion, has not been deemed necessary. Therefore the review will be conducted at the usual standard time as per policy. WTF???? I thought the problem was they didn’t order the drug? Turns out they never got authorization to get the drug or to administer it. Authorizations have to go to my doctor. My first step started when…

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Second Ocrevus infusion postponed

Second Ocrevus infusion postponed

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I received a call at 5:15 yesterday, the reason why is the kicker. The pharmacy didn’t have it in stock they had to order it. Well duh, it is a specialty drug not a stock item, of course it had to be ordered!!!! I not only made this appointment 6 months ago but I recently changed the date from Monday to Wednesday. So I’ve spoken to the infusion place a few times over the last few weeks. You’d think maybe…

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A day in the life…

A day in the life…

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I’m seeing my sister from California today. She’s in for a very, very fast visit to New York and is coming out to Long Island for the afternoon. Yippee. I haven’t seen her in a while, she lives so far. I’m excited to spend some time with her today. First this morning I have to go to the doctor, yet again, to re-do bloodwork. Something where they didn’t take enough blood to get the test they required done. I don’t…

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One of those mornings

One of those mornings

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I jarred my head something fierce this morning. Getting up to go to the bathroom, my knee buckled, and I went down. I slammed into my floor and I just laid there stunned for a few seconds a little dazed. I just woke up it was little after 6:30, it happened so fast. I decided not to go back into bed to lay down for another half an hour, because I’m not 100% sure that I didn’t give myself a…

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Manifesting your desires

Manifesting your desires

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Thought I do something different today. I’ve been doing this meditation for the past few weeks. This is a simple guided meditation in less than 12 minutes. It’s all about the law of attraction. Change your life and try something new. In the New Thought philosophy, the law of attraction is the belief that by focusing on positive or negative thoughts people can bring positive or negative experiences into their life. Wikipedia https://youtu.be/fKV8_5h3P_I

The heartbreak of loosing a pet

The heartbreak of loosing a pet

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I’ve been blogging for a little shy of two years. I’ve come across many other blogs in that time. However I have one that is truly my favorite, Conversations with Stella. Conversations with Stella is about an English bulldog having conversations with her lady human and sometimes the rest of the pack. It’s always well written, very funny, and it has English bulldogs in it. What I find such a benefit to blogging is that when your interact with so…

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How much I love my dogs…

How much I love my dogs…

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Let’s start with a happy Friday. I appreciate Friday also, the weekend still is the weekend for me. This was a long week and I’m glad it’s over. Next week is not much better, so you might hear this again. I’m sitting in my usual spot gazing at the water. It isn’t sunny but that fog isn’t here either. I got both my babies with me My Marshmellow is making me a bit nervous. He wouldn’t eat his dinner yesterday….

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Multiple Sclerosis drugs, vitamins and therapies

Multiple Sclerosis drugs, vitamins and therapies

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I kicked ass this morning. New workout and I stood on my feet for a record of 18 minutes. Omg!!! That’s incredible. Granted my feet can’t move too much, but that’s ok, that was an tremendous amount of time. In physical therapy, one of the main things they do for people with multiple sclerosis, or people that can’t really stand on their own anymore, is put them in a device that either stand them up or strap them in bars…

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A Wednesday hodge podge

A Wednesday hodge podge

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It’s a vision of white outside my window That’s not snow, it’s fog. I can’t see the water at all. The mist down by the water is definitely something I have to get use too. I’ve woken up many mornings to that view instead of this The fog reminds me of the Stephen King short story called The Mist. I think they made a movie out of it. It’s eerie to look at but also cool in its own way….

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A tough morning

A tough morning

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I’ve added my Beachbody workouts back into my morning. I know that I push my body to its limit when I do these. I also know my body needs a long recovery time. I usually plan accordingly. Today, I didn’t plan on issues with Zoey too. I had to stop my workout to “clean up” after Zoey. Not normally a big deal but my legs were already 20 minutes into the workout. I ended up sliding down on the floor….

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