Browsed by
Tag: daily life with ms

Self love day 5- thank you letter to my body

Self love day 5- thank you letter to my body

Dear body, I’ve never said thank you. I’ve never appreciated the amazing things you do without me even thinking about it. You breathe without me thinking about it. Each breath is taken without the thought process first. How amazing is that? Food digest and eliminates just by your own functions. Blood is circulated from my head all the way to my feet and back up to my heart and I don’t do anything about it. The functions of the human…

Read More Read More

Self love day 2- I rock!!!!

Self love day 2- I rock!!!!

One thing I can say for myself, is I never let MS dictate what I can or can’t do. When I was married I bought a treadmill. I’m sure you can guess, it wasn’t long before that treadmill became an extension of my closet. Clothes ended up being tossed over it more often than the treadmill was ever turned on. After my divorce I made the decision to buy an elliptical. In that decision I also made a deal, I…

Read More Read More

This is how we roll- site fixed

This is how we roll- site fixed

I’m doing Zumba this morning. I decided to do one of the longer programs which means I’d be sitting soon. I now sit on my big comfy chair, at the edge, because first I could see the doggy pad and keep an eye on what Zoey is doing, and second because I find my comfy chair has a little bounce so it helps me bop. I got tired fast doing Zumba so I sat after the third song, but my…

Read More Read More

Overcoming Multiple Sclerosis – OMS

Overcoming Multiple Sclerosis – OMS

I need to thank Jen from Tripping through Treacle’s http://trippingthroughtreacle.com/ Who reminded me of this. If you haven’t followed my blog, for almost a year I became vegan. I did it for health reasons. I wanted to see if it made any difference in my multiple sclerosis. The real reason I ended up stopping is because for some reason I started putting on weight. I ended up joining weight watchers and at the time being vegan was very difficult to…

Read More Read More

Swimming, swimming in the swimming pool

Swimming, swimming in the swimming pool

It’s Friday. Happy Friday to everyone. It’s a gloomy day again in New York. That’s OK I’m happy to report I don’t need to go out today. I’m going Swimming though. I’ve been doing laps in the pool. LAPS!!!! I wasn’t able to do that a few months ago. I was hardly able to do a stroke. LAPS!!!! It’s exciting. The truth is my body remembers how to swim even though I haven’t tried it in years. . My feet…

Read More Read More

Update on the European withdrawal on high dose biotin application

Update on the European withdrawal on high dose biotin application

As promised it was the first question I asked my neurologist. She explains that the study had 93 people in it. According to the study, over the course of a year, of the 93 people enrolled something like 20 of them had relapses that I never had a relapses before. That’s why they deemed that the high does biotin was not effective. This is the information on the application for the withdrawal. http://www.ema.europa.eu/ema/index.jsp?curl=pages/medicines/human/medicines/004153/wapp/Initial_authorisation/human_wapp_000247.jsp&mid=WC0b01ac058001d128. Well my doctor explained that she, as…

Read More Read More

No questions for my neurologist

No questions for my neurologist

My mother sent me a text yesterday to write down the questions I have for the neurologist. It’s been 20 years, what questions do I still have for the neurologist? I know the research, I know what’s out there and I know what I’m on. Unfortunately, there is nothing for secondary progressive and therefore there is nothing that will stop the MS progression at this point. I’m very positive, but I’m also a realist. I’m not gonna run around with…

Read More Read More

Circulatory issues possibly Raynaud’s Syndrome

Circulatory issues possibly Raynaud’s Syndrome

So I went to the podiatrist. As soon as he looked at my feet the first words he said was your feet are swollen. He asked if I could possibly have Raynaud’s syndrome, have I seen a vascular doctor? Oy-vey… I knew the swelling isn’t normal but another doctor. He said the good news is I feel the pulse, that means that the blood is in there still circulating through my feet. However, he said this is the circulatory issue…

Read More Read More

Ocrevus infusion: how you feel the following weeks

Ocrevus infusion: how you feel the following weeks

Every six months it’s hard to remember what happens. I should look back to my own blog posts. I was so wrapped up in how the steroids made me sick that I forgot that they would also give me burst of energy. It explains how I stood for a half an hour during a work out. This week that burst of energy went from 100 to about 30. I wrote that my workout was pretty bad in terms of stamina…

Read More Read More

Good MS days are few

Good MS days are few

It’s always a good day followed by bad days. Doesn’t it always seem to go that way? I woke up this morning feeling like I smoked six packs of cigarettes. I haven’t smoked in almost 4 years maybe more. I hate that feeling. It’s something like the MS hug but not quite. I have a headache mild but there nonetheless. I also had a little numbness going down my left side out of nowhere. My stamina in my workout was…

Read More Read More

Verified by MonsterInsights