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Tag: daily life with ms

45 years old, it’s a difficult pill to swallow

45 years old, it’s a difficult pill to swallow

Good morning and happy Monday. In the US its Labor Day and most people are off from work. Today marks the end of summer. School usually starts tomorrow for most kids. To me, it’s another day. I don’t work anymore. It’s been well over a year, closer to two years and I’m still adjusting to that fact. You’d think I’d have all this time on my hands but everyday seems to fly by no different than if I was on…

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Ocrevus infusion aftermath conclusion

Ocrevus infusion aftermath conclusion

Yesterday was a rough day. I was very uncomfortable and tired. It happens but the good news is I knew WHY it was happening. I slept a lot yesterday. I took a 2 hour nap on the couch with my fur babies on either side. Even with the nap I still went into bed at 9:30pm. I feel less fatigued today, I don’t feel that weight in my bones but my skin is still sensitive. I HATE steroids. This was…

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Vegan myths blood work proof

Vegan myths blood work proof

When I decided to eat vegan, I heard from many people; you won’t get enough protein, you be deficient in vitamins or you’ll be hungry because you can only eat salad. I’m now vegan for 9 months and I have proof that none of that is true. When I first became vegan I did loose about 8 pounds but that weight has returned and doesn’t fluctuate much. I can attribute some of that to a change in exercise due to…

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Life with MS and living alone, I’m a fall risk

Life with MS and living alone, I’m a fall risk

OK, maybe this is a little too premature. I mean this is only day two of being home without my daughter. I had to run the first errand today that normally she would run for me.  Needed money at the bank. To take my walker out to go to the ATM that’s just way too many steps. So I wrote a check out to myself and cashed it at the drive-thru teller window, it worked. I have to be smart…

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Ocrevus infusion cancelled

Ocrevus infusion cancelled

That was the message I received on my answering machine at 3:42 on Friday afternoon. I, of course, didn’t hear this message until late Friday night because I was in the city moving my daughter into her dorm. Of course this was Friday, they are closed Saturday and Sunday and my infusion was scheduled for Monday. Of course they offered no explanation as to WHY this was cancelled…was there another insurance issue? Drug issue? No idea. Just your appointment on…

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My Multiple Sclerosis from my parents view

My Multiple Sclerosis from my parents view

My dad and I were talking about me having multiple sclerosis. He was saying it wasn’t fair, I have a good heart. My first words were I still have a good heart, that hasn’t changed but I knew what he meant. I heard this before from him, from my mom, my stepdad, from most of my family. They look at multiple sclerosis “stealing” away part of my life. I’ve discussed this topic a few times in my blogs.    …

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The “weight” it is…8 changes I made this month off the scale

The “weight” it is…8 changes I made this month off the scale

I’m very proud of myself, I haven’t stepped on the scale in a month. Today for this post, I stepped on. My weight 150.3.  Technically, I am down 2lbs from a month ago, but my body usually hovers around the 150.0 mark naturally. For clarification purposes. I am 5’2″ so according to the charts, I am overweight. I am a size 8 in jeans, even own some 6 and some 10. I decided a month ago I had enough of…

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When will I learn, I can’t do that!!!!!

When will I learn, I can’t do that!!!!!

I think I can still do things but I can’t. Today was one of those mornings. My coffee pot broke. I have one being delivered today from Amazon. I wanted to go to a local drive thru place to get a cup of coffee. Well after my fall on Sunday night, nobody wants me to leave the house my house without help. That’s still not a feasible requirement since the increased nursing hours are a few weeks away. Anyway, that…

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My first Ocrevus infusion

My first Ocrevus infusion

The appointment was called for 11 but as I’m walking out my door, I received a call that they still didn’t have the pre-medicine orders from my doctor. After  that call was made, yet again, they informed me I can come at 12:00. I got there and it just took time to get things rolling. Except for a TV and a comfy chair, it was an institutional type of room. However, the people were very nice. I knew exactly what…

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Things that go bump in the night, or the concrete.

Things that go bump in the night, or the concrete.

I got back from my sisters at close to 8pm last night. Whenever I go away and the trip ends, the highlight to coming home is seeing my dogs. No big shocking news there,especially if you follow my blog. I stepped out of my car and looked up at my window to wave hello to my marshmallow howling in the window. I do this every time I come home since his face started looking out for me. Well, unfortunately, last…

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