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Tag: diagnosed with MS

More skin issues after Rituxan

More skin issues after Rituxan

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Something happened after my Rituxan infusion and whatever it is, it is still happening. https://multipleexperiences.org/2019/09/18/allergic-reaction-to-rituxan/. I’ve continued to get these blisters under my breast since my infusion. https://multipleexperiences.org/2019/09/17/blisters-on-breast/ Each one has left a scar so you can count how many there have been on each side. I’ve changed my bras, changed laundry detergent, even try to go bra less white home, they still come. The good news is I am seeing a dermatologist on Thursday as well as my MS…

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Defining a day in a life with MS

Defining a day in a life with MS

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I realize something last night, for all my complaining about fatigue, I’ve been staying up most nights till 10 o’clock. If you look back to before I saw my doctor, I was in bed by eight and asleep by 8:30. https://multipleexperiences.org/2019/09/03/trip-to-the-neurologist/ This is before he gave me the Adderall. Yes, my body isn’t recovering from my exercise. Yes, I’m still exhausted and finding it hard to move about as easily as I was. However, I’m not at that stage of…

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Metro article: We believe we can stop MS, and this is how

Metro article: We believe we can stop MS, and this is how

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Came across this exciting article about repairing myelin yesterday and I wanted to share. https://metro.co.uk/2019/10/09/can-stop-multiple-sclerosis-10875070/?ito=article.amp.share.top.email Twenty-five years ago there were no treatments for multiple sclerosis (MS) – a neurological condition that affects more than 100,000 people living in the UK. Today the picture is very different. There have been major advances in treatment and, following a series of more recent discoveries, we believe we can stop MS. We’ve reached a point where we know what’s causing the disease to progress….

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A really bad night

A really bad night

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It was one of those MS nights you’d like to forget about if you could. I didn’t even get warnings this time like a stomach cramp or something. I just felt like I might need the bathroom so I got up. I walked about three steps before the accident happened. As my mom says better out then in. The problem was I was alone and already exhausted so this certainly didn’t help. I showered, cleaned and changed and was just…

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Fatigue versus tired

Fatigue versus tired

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I went into bed early as I’ve been doing every night recently. Last night I didn’t wake up until 3am. I slept straight from 9-3. That is huge for me!!! Then I slept until 8. I wish I could sleep every night like that but my bladder disagrees. My bladder doesn’t usually hold for more than three hours. However even with that great night sleep I still woke up tired. I would have stayed in bed but my bladder had…

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Realistic view of multiple sclerosis disability

Realistic view of multiple sclerosis disability

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It didn’t flood in the streets yesterday so no daytime pictures to show you. Although that bulldozer is still there I’m excited today because we are playing mahjong here in my building. I’m excited to play but exhausted so I’m grateful to be playing here. I feed the dogs and showered that’s it, I’m wiped out. This is why I straightened my hair because I’d never have the energy anymore to blow dry and style. I’m glad I’m still able…

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A week after Rituxan infusion

A week after Rituxan infusion

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Good morning happy Monday. I thought I’d give you the rundown of how I feel a week later after my Rituxan infusion. I’m happy to say the allergic reaction is healing and I’ve had no more blisters or open sores. Very bizarre. I’m still on the antibiotic and I have two more days left. I’m glad to say I am out of the chance of infection and I’m not gonna get cellulitis. All good news. I worked out yesterday for…

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Bike MS please support my brother

Bike MS please support my brother

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Please donate to a great cause. This is my step brother Howard who bikes for me. He bikes and I can’t. I can barely walk. We need people like him out there raising awareness and funds to fight MS and find a cure. Please help him as he once again bikes for MS. ???? Hi There – It’s Howard, and I’m still out here pedaling for your donations. And now I need to crank up the email campaign – put…

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Tough morning

Tough morning

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I got rid of the migraine that I had for three days straight. Nothing worked until I used a little medicinal marijuana for the first time in years. That at least took the edge off because it helped release the spasticity through my back. I woke up this morning ready to take on the day pain free. I wanted to swim this morning first thing. I was excited to once again try to hit my mile goal swimming laps. I…

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Me and my wheelchair

Me and my wheelchair

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I made it!!! Another summer survived. I’m ready for my jeans and sweatshirts. Im ready to turn off the AC. I’m ready to open my balcony windows and let the crisp air in through the condo. I’m ready to snuggle under warm blankets. I did ok this summer mainly because of my van and wheelchair. I couldn’t have done most things without the use of my wheelchair. Thankfully my van provides me with that ability to be mobile and safe….

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