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Tag: diagnosed with MS

New Multiple Sclerosis Culprit Identified-B-cells and T-cells in MS Medical News Today

New Multiple Sclerosis Culprit Identified-B-cells and T-cells in MS Medical News Today

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https://www.medicalnewstoday.com/articles/323006.php New multiple sclerosis culprit identified It is still unclear what causes multiple sclerosis, but new research closes in on the faulty immune system mechanisms involved in the development of this condition. New research has identified another type of immune cell that may play a role in MS. Multiple sclerosis (MS), which is an autoimmune disease, causes the immune system to mistakenly attack myelin. Myelin is the substance that coats axons, which are the projections that allow neurons to connect…

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Dysphagia and Multiple Sclerosis

Dysphagia and Multiple Sclerosis

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Dysphagia simply put is difficulty swallowing. It means it takes more time for food to travel from your mouth to your stomach. Why this affects people with multiple sclerosis? Muscle weakness once again. The good news is it is seen more in advance stages of the disease but it still can appear at any time. It can be mild or advanced. Hey, it’s MS. It has no set plan of attack. According to WebMD https://www.webmd.com/multiple-sclerosis/speech-swallowing Symptoms of a Swallowing Problem…

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Ocrevus infusion one week away

Ocrevus infusion one week away

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Let’s see if I can have one of my infusion without any issues. I’ve already received the call to verify my new insurance information and have heard nothing since. Last time was the mistake where they once again order the split in the medicine and I did 300mg two weeks apart when I was supposed to take the full dosage of 600mg one time. So even though I’ve been on Ocrevus now for over a year, I still have yet…

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Back home

Back home

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I realized something being away, my home is definitely the easiest place for me. I love my sisters house it is absolutely beautiful. It’s very easy for me to get around on the first floor. However, there is no bathroom with a shower. They made a shower outside which is really cool but it’s a little more difficult for me to get to. It’s difficult for me to navigate her outside property. The outside property is so amazing but getting…

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My optic neuritis story

My optic neuritis story

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My first unofficial MS relapse was optic neuritis in 1997. Six months before my diagnosis. The optic neuritis wasn’t even diagnosed at the time of the relapse it was realized after my diagnosis. I was working in a fast food restaurant as an assistant manager, who was about to be promoted. However, my manager at my current location and I didn’t always see eye to eye. She added a lot of stress to my situation at work. I couldn’t wait…

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Oops I did it again

Oops I did it again

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I am so run down again and I don’t even know what I did. Of course I do, it was the stress of the parking space that I’ve dealt with for the last week https://multipleexperiences.org/2018/08/08/he-called-me-a-bad-name/. Ever since I stopped working, I have very little stress in my life. Aggravation, yes with my insurance company I deal with that all the time. For some reason every now and then I get into some sort of stress situation my body just can’t…

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Housing help for those with Multiple Sclerosis

Housing help for those with Multiple Sclerosis

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To recap my situation, I had asked my condo for a permanent parking spot close to the main door. This was because it was the only door I could enter that didn’t have steps, which I can’t do, and wasn’t too far for me to walk. It was granted. Then due to other condo residents requesting the same thing, they gave 5 other people spots. The non-disabled residents had an uproar. Now they voted to revoke ALL the reserved spots….

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A MS anger post

A MS anger post

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If you follow my blog you know I’m normally positive. I don’t have the energy to be positive right now. I am so tired of being 46 and having to have somebody cut my food. If I make some sort of protein for dinner, like steak which I recently started eating, my aid has to cut it before she leaves. I could barely even cut chicken. I can barely use one of my stainless steel silverware and usually opt for…

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High dose biotin

High dose biotin

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Since I was in the hospital, this is one of the pills that has changed. First it never made my weekly pill box, which was just a complete oversight. Second, the hospital doesn’t give that out. So I must say I haven’t correctly taken my high dose biotin for a week. It occurred to me, this morning, that this could be the reason I’m having difficulties regulating my body temperature since about Saturday. I finally started taking it again 3…

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High dose biotin

High dose biotin

Comments 2 comments

Since I was in the hospital, this is one of the pills that has changed. First it never made my weekly pill box, which was just a complete oversight. Second, the hospital doesn’t give that out. So I must say I haven’t correctly taken my high dose biotin for a week. It occurred to me, this morning, that this could be the reason I’m having difficulties regulating my body temperature since about Saturday. I finally started taking it again 3…

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