#just wanted to add this note because this was such a dismal post. A few hours after I wrote this post I realize something very important, with secondary progressive MS you are not functional one day to Stuck on the floor another. I don’t have relapses anymore. I now realize I was sick with this abscess infection and it played havoc with my MS. So yes, this is a possible future for me with MS, but it won’t happen overnight….
Last night was a very bad night. All my family and friends who haven’t heard the story I’m sorry you’ll be hearing it through my blog. I am fine. If I wasn’t I wouldn’t be writing this today. I played mahjong yesterday for the afternoon and got home around 3. I was completely exhausted more than normal. I started feeling achy as well. I think I was running a low grade fever because of this abscess on my stomach. More…
Something happened after my Rituxan infusion and whatever it is, it is still happening. https://multipleexperiences.org/2019/09/18/allergic-reaction-to-rituxan/. I’ve continued to get these blisters under my breast since my infusion. https://multipleexperiences.org/2019/09/17/blisters-on-breast/ Each one has left a scar so you can count how many there have been on each side. I’ve changed my bras, changed laundry detergent, even try to go bra less white home, they still come. The good news is I am seeing a dermatologist on Thursday as well as my MS…
Let me tell you, I’ve been dealing with bowel issues for a very long time having multiple sclerosis. https://multipleexperiences.org/2019/04/13/when-the-back-door-garbage-chute-isnt-working/. https://multipleexperiences.org/2019/06/07/backdoor-chute-muscles-missing-signals/. I’ve tried many different things that have worked for a short while only to stop working again. https://multipleexperiences.org/2019/04/19/backdoor-chute-suggestion-worked/. I finally went to see a gastroenterologist for help. https://multipleexperiences.org/2019/07/15/gastroenterologist-visit/ We started me on Linzess and tweaked things because it wasn’t really working out. https://multipleexperiences.org/2019/08/14/gastroenterologist-visit-again/. After trying a few things I landed back on Linzess and Amitiza. Eventually I was either not…
I realize something last night, for all my complaining about fatigue, I’ve been staying up most nights till 10 o’clock. If you look back to before I saw my doctor, I was in bed by eight and asleep by 8:30. https://multipleexperiences.org/2019/09/03/trip-to-the-neurologist/ This is before he gave me the Adderall. Yes, my body isn’t recovering from my exercise. Yes, I’m still exhausted and finding it hard to move about as easily as I was. However, I’m not at that stage of…
I’m happy to report all the work in my condo is now complete. I had some other little projects done as well as fixing the closet. We re-touched my hallway from the scratches I’ve made with the scooter. I’ve hit into the walls many times and the walls were starting to annoy me. I had a ramp made for my balcony. I can now get out there with my scooter to clean the dog pads as well as to sit…
It’s another one of those weeks. I overdid it on Tuesday. Overdoing it consisted of sitting at a table helping family with papers and making some phone calls. Why I was so crippled from that I can never understand but I was….completely. Then the migraine started. That was just the beginning because I woke up Wednesday with the migraine and I was still exhausted. My aid was sick too so it was just me. I managed the day ok but…
I thought it was going to be so easy, after all I’ve had my iPhone, iPad and my iPod forever. It is not the same thing. I’ve learned that really fast. Thankfully I signed up for the online session with Apple to teach me how to use my watch today at 11.  Every morning I’ve woken up to a different face screen. I have tried to lock this watch at least six different times so that the screen doesn’t…
First an update from the blisters and Rituxan Blisters and Rituxan. Doctor wants me to start washing all my clothes in free and clear detergents. I really could have called that one. She wants to rule out allergic reaction to any detergent regardless how long I’ve been using it. I get that understandable but the bras I’ve been wearing lately are actual bras. Like with the clasp bras. Bras I gave up on years ago because my hands can’t do…
I am at my doctor’s office for an appointment that has been canceled twice. Checking on those blisters that are still appearing under my breast. Blisters on breast. Allergic reaction to Rituxan. Originally deemed an allergic reaction to Rituxan because they appeared within hours of doing the infusion, they are still appearing. My neurologist was the only person who didn’t think it was a reaction to Rituxan even though it said specifically on the Rituxan site: https://www.rituxan.com/patient/starting-rituxan/rituxan-safety-information.html Severe Skin and…
