Sometimes it is overwhelming dealing with a chronic illness and navigating through daily life. I know I’ve lived there. I use to unleash it all on my mom. She has so much empathy and I adore her but she doesn’t have multiple sclerosis and she didn’t, she couldn’t, fully understand. I was sad for a long time until I changed my thinking and changed my perception on life. I have a life coach that helps me stay on track and…
Good morning. I’m happy to report I am finally feeling better. I actually started feeling a little better on Saturday. I went swimming and was able to still get around my condo without having that bone feeling fatigue. So it took about 6 days for me to start feeling better. By Sunday I was good. It was a tough week but I don’t have to worry about the infusion again until March. I can handle that. I remember when I…
Fatigue!!!! That’s the only word I could use. I’ve been exhausted but it’s been in my muscles too. It’s been hard just getting around my condo because of the muscle fatigue. I almost went into my scooter last night. Every step is difficult to take not only in my legs but in my arms holding me up with the walker. I don’t remember feeling this way last time but last time they messed up and split my dose. This was…
I had my physical yesterday and brought up my favorite topic, weight. Once again I put on a couple of pounds. This has been a very frustrating year for me when it came to weight. My doctor finally made some sense as opposed to just saying it’s your multiple sclerosis. He explained why. Yes, I do swim which is great, but I also sit around quite a bit. As my symptoms have gotten worse, my muscles have atrophied to a…
You just can’t make this stuff up. I think the last problem has been finding an agency to come to my home for the 5 hour infusion. The reason I say I think is because I’m not even 100% sure that is what the issue is about. If that is the hold up I told them I could do it there but now that might not be an option. I’m very confused. I’m still not sure if I’m getting the…
My sweet, smart, sneaky boy got out the other day when I was leaving for therapy. Man he is fast. If I’m in the house, sitting in my chair, you can open the door up wide, he would never leave. Once he knows I’m going out, it’s a mad dash to get out before him. I am either in a scooter or using my walker there is no such thing as a mad dash for me. I purchased a gate,…
Wouldn’t be me if I wasn’t extreme. Vegan to Keto, that’s extreme. Why would I even think about this? A movie called the Magic Pill on Netflix. Ironically, it was watching Forks over Knives on Netflix that I became Vegan. My diet isn’t working anymore and hasn’t been working. I’ve been maintaining a ten pound unexplained weight gain following a plant-based diet and tracking on weight watchers. This past week I put on an additional 4 pounds. I don’t eat…
https://www.mstrust.org.uk/news/views-and-comments/neuropathic-pain-invisible-illness Neuropathic pain affects up to 25% of people with MS. It is a consequence of damage to the myelin that surrounds nerves in the central nervous system. Very commonly the pain is not due to physical damage to the nerve but as a result of a physiological change within it. This means that even when the initial cause is treated or removed, the nerve remains permanently changed and the resulting painful symptoms can become a long-term problem. Once present,…
Each year my step-brother bikes for Multiple Sclerosis. This is his reasons, his letter and his team. Please donate to help find a cure for MS. He bikes under Team Jamie but he bikes for us all. Why We Want to Create a World Free of MS 9! years ago, when I said I wanted to ride 30 Miles for an MS Bikeathon, my step-but-real sister Jamie said “I can barely walk 300 feet – why do they do these…
Dysphagia simply put is difficulty swallowing. It means it takes more time for food to travel from your mouth to your stomach. Why this affects people with multiple sclerosis? Muscle weakness once again. The good news is it is seen more in advance stages of the disease but it still can appear at any time. It can be mild or advanced. Hey, it’s MS. It has no set plan of attack. According to WebMD https://www.webmd.com/multiple-sclerosis/speech-swallowing Symptoms of a Swallowing Problem…
