Good morning. I’m happy to report I am finally feeling better. I actually started feeling a little better on Saturday. I went swimming and was able to still get around my condo without having that bone feeling fatigue. So it took about 6 days for me to start feeling better. By Sunday I was good. It was a tough week but I don’t have to worry about the infusion again until March. I can handle that.
I remember when I was first diagnosed, almost 21 years ago, and the first drug I was on was Avonex. That was a once a week intramuscular injection that hurt like hell and made me so sick. Betaseron came next and that was a subcutaneous injection every other day but I still had some major flu like symptoms with it. I was on it for 12 years and would fight through those symptoms all the time. I remember cold chills at 2am and taking these scalding hot showers before I could try to sleep again.
There were many tough nights and days. I look at the 6 days with Ocrevus as nothing in comparison. Maybe it’s because I don’t work now and back then I did. I couldn’t imagine having to go to work amidst some of those severe fatigue days. However, I know I’m good now for 6 months. No night chills or flu like symptoms. No injection site soreness. I am always asked does it help? My answer is the same, I have no idea. It doesn’t make my symptoms of MS better and I still get worse, but if I wasn’t taking it would I be even worse? Not really something I’m willing to find out. Everybody’s MS is different and everybody MS therapy is different. Work with your doctor to find what is best for you.