Two amazing things happened over the last two days that I have to tell you about. Yesterday I actually swam in the pool. I do the shorter side of the pool as opposed to the length for safety reasons. My poor aid doesn’t want to have to deal with jumping in and trying to save me where I can’t touch the bottom. There I was, back and forth and back-and-forth for almost a full half an hour in the pool….
I saw this title on someone’s post, and it just brought this song to my head. I used to be a giant Depeche Mode fan. I really grew up listening to both Depeche Mode and U2. I seen them in concert almost as much as I seen U2. Now I barely listen to either one of them. Strange, because I still love their songs. Anyone who has a chronic disease understand the term walking in my shoes. So today I…
I’m happy to say I’m all done with Ocrevus for six months. I just have to deal, of course, with the side effects from the steroids. I have to be honest too, these medicines and these infusions mess with my mood. I feel like I haven’t been my happy self in so long. I’m back to living in my four walls of a MS because I haven’t left my apartment. I’ve gone out for physical therapy and a couple errands…
Does rain ever affect your multiple sclerosis? I find lately that the moisture in the air does have a small impact on my day. It’s certainly plays a role with my migraines. I’ve had headaches basically all week. However today they are expecting a nor’easter. New York State agencies are gearing up for a Thursday-to-Saturday nor’easter that could drench and blast Long Island with rain and high winds and envelop upstate with snow, officials said. From the moment I woke…
I’m seeing my sister from California today. She’s in for a very, very fast visit to New York and is coming out to Long Island for the afternoon. Yippee. I haven’t seen her in a while, she lives so far. I’m excited to spend some time with her today. First this morning I have to go to the doctor, yet again, to re-do bloodwork. Something where they didn’t take enough blood to get the test they required done. I don’t…
I kicked ass this morning. New workout and I stood on my feet for a record of 18 minutes. Omg!!! That’s incredible. Granted my feet can’t move too much, but that’s ok, that was an tremendous amount of time. In physical therapy, one of the main things they do for people with multiple sclerosis, or people that can’t really stand on their own anymore, is put them in a device that either stand them up or strap them in bars…
When I first was diagnosed, maybe in the first 10 years, I have to admit any little thing I felt I used to think immediately it was the multiple sclerosis. It took me a while to kind of know how MS showed in my body, really what MS was, and how it was going to affect me. Now that it’s been 20 years, I think what I find amazing is when other doctors don’t have an answer so they blame…
It’s Sunday and I usually post a song or a recipe. I kind of take the day off with the blog. However today I’m gonna write a quick post about falling. I still fall a lot. I walk with a walker all the time but I still have moments that I can explain I just lose balance. I was on the side of my bed, cleaning up my dog area, my bed and the wall right next to me and…
It just dawned on me, that February 14 was my 20 year anniversary with MS. It was the weekend of February 14 that I was moving it to my house with my ex-husband. My left leg started to feel numb. The numbness started traveling up my leg through my muscles. I wasn’t just numb, my muscles were becoming week and atrophied. It was The following Friday I went to a family doctor who sent me immediately to this neurologist. To…
You have to be thankful for the small things. I’m grateful that my multiple sclerosis “issues” were handled effectively for my stay in Florida, despite the heat. I know both my dad and stepmom are nervous. They aren’t around me daily and the symptoms of my MS scare them. It’s more the fears of the falls I think. I did fall but neither of them were in their presence. One was me once again sliding off the toilet. What’s with…
