Better today but still so tired. I went into bed at 8 last night and got out of bed after 8 this morning. Today is the first day I’m drinking coffee. Hopefully that helps. However I can feel already my body is exhausted. I did a very simple 30 minute workout because I have a few things going on today and didn’t want to overdo myself. Yet I’m sitting here exhausted. This is not good. So much has gone on…
Rough day yesterday. I didn’t feel well when I woke up in the morning. I didn’t pay attention. I did my normal routine and was working out when Minx started eating something he shouldn’t. I reached down to pick up my grabber, which I myself knocked over, and literally fell out of the wheelchair. I got myself right back up but was unable to turn around and get myself back into the wheelchair and slid down again. My body was…
I have multiple sclerosis. Sometimes this disease makes it so difficult. I pray for a day that everything wasn’t so hard. Yet one day I’ll look back at days the way I am now wishing I could have these back. That’s the thing, I know in time, it will be worse. That’s a truly sobering thought, knowing for sure my MS will be worse. People ask how I have such a positive attitude, with the real knowledge I live with,…
I had 2 choking episodes yesterday. Maybe choking isn’t the exact word because I really just swallowed wrong. The first one was mangos. Cut up in small pieces but slightly hard and very tart, just the way I like them. I swallowed wrong but it wasn’t the actual mango that was causing the problem. The tartness of the piece in my saliva is what I swallowed incorrectly. It caused me to cough, as it should, however I couldn’t move that…
I spent 6 hours at the hair salon the other day. I had my hair straightened. A long process but worth the time it takes. I will not have to worry about doing my hair all summer. Shower, let dry naturally and it comes out perfect. That takes a tremendous amount of pressure off me not having to worry about my hair. Anytime I can clear something off my plate, I take it happily. The only thing is the straightening…
Good morning. Another week starts again. It is grey looking outside. However the weekend was gorgeous. Open windows and fresh air, I love days like that. Having multiple sclerosis, I like when weather warms up but not when it gets hot. Unfortunately summer is right around the corner and that’s when the bad days will outnumber the good. I don’t have to explain this to anyone with MS, most people have this issue. That’s why I cherish those days with…
Happy Monday to everyone. I’m hoping the weekend was lovely for all. I was hit with some kind of stomach bug that disrupted my Saturday. That was the first time in a long time I felt those crippling stomach pains. Good to know I could still feel things in my belly. I must admit, sometimes I wonder since I never do. I mean I can stub my toe and go into a spasm that locks my legs up for a…
I had a phone conference with my MS specialist yesterday in New York City. We discussed many things but the most important thing she discussed was the Covid vaccination. She knows that I had already had received both vaccines and of course that I take Rituxan. Rituxan is the older sister drug to Ocrevus. It seems that for people on these drugs, the antibody production for SARS-CoV-2 was reduced compared to other multiple sclerosis drugs. In my doctor’s easier language,…
I get these pains, sometimes on my back or my side, out of nowhere. Usually along my bra line. Since I wear sports bras, this is a thicker band area. It always feels like there is something wrong on my skin in a certain area. Like a cut, rash or irritation except nothing is there when you look. The area is fine. No red spot even to show something coming up on the skin. It is completely normal. It just…
I’ve been so tired lately. I never really took in to account how my body would react to work being done in my place. I knew I would be shifted around slightly but didn’t think it was a big deal. I was clearly wrong. By the time the afternoon comes around I’m struggling to get myself to the bathroom. I’m back to dreading every time the need comes. Sometimes I’m so tired that the hesitancy I talked about recently Bladder…
