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Tag: living with MS

Life expectancy with Multiple Sclerosis

Life expectancy with Multiple Sclerosis

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I was reading an article yesterday about the life expectancy of people with autoimmune diseases. https://health.usnews.com/health-care/patient-advice/slideshows/autoimmune-diseases-that-can-be-fatal. Of course there was a section dedicated to multiple sclerosis. This said on average life expectancy of someone with MS is 7 years less than the average person without the disease. I’ve heard this number before but it doesn’t make me very happy. My thought is why? Why would MS shorten our life span? Other than complications from the more serious symptoms of MS…

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Occupational therapy evaluation

Occupational therapy evaluation

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So I went yesterday for an occupational therapy evaluation at the same place that I’ve been going to therapy for the past four years. However I only participated in OT last year. I never realized I could do both. When my insurance ran out last year I actually took a break for the first time. Normally when my insurance runs out I go on their maintenance program but this time I just decided to continue doing my own exercising at…

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I’m too tired for Monday

I’m too tired for Monday

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I’m not sleeping well which is unusual for me. Sleeping has never been my problem. I can sleep all day and night normally other than getting up for bathroom breaks. Once in a while I deal with spasticity issues that plague my sleep. That can last for a night to a week to a month but that is sporadic and the medications I take at night normally do a good job preventing those episodes. I take baclofen, neurontin and flexeril…

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Getting to know a new bathroom floor

Getting to know a new bathroom floor

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I knew I shouldn’t write that about falling. I was playing mahjong yesterday and we were actually playing here in my building. It was one of those days where I was just not holding up very well in the game and I was having difficulties keeping up right. OK, it happens. I wasn’t going to stop playing because I was so happy. I haven’t played in so long. my bladder has been really cooperative and I don’t normally have to…

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Still blogging in 2020

Still blogging in 2020

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Year 2020, that’s crazy!! How was your first day of the New Year? I’m still here writing a blog to the internet. I love my blog, it is therapy for me, a way for family and friends to understand my daily life and a way to meet other bloggers and people. I should say this everyday, THANK YOU for reading, commenting and inspiring me to continue to write. I’m not a writer, actually English was my poorest subject in school….

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Happy New Year to Everyone

Happy New Year to Everyone

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So did you make your New Year’s Resolutions? I don’t make resolutions based on a day in the year but I do have things I’m focusing on in 2020. I’m excited for those tell you about those things. I’m doing Gabby Bernstein’s 21 day manifesting challenge https://gabbybernstein.com/manifestingchallenge/. I’ve never done anything like this and Gabby has never offered anything like this. It starts January 1st so it is like a New Years resolution but I have the ability to access…

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A day off from MS, my one wish

A day off from MS, my one wish

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So far so good. I probably shouldn’t say that, I’ll jinx myself. I’ve been fall free for a few weeks letting all my bruises finally heal. Although I must admit to a bad MS day yesterday that put me in a bad mood. I once again took off a handle on my kitchen cabinet with the wheelchair and marked up a wall. I’ve had this kitchen cabinet repaired twice already. It is just frustrating sometimes in the wheelchair because the…

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No place like home

No place like home

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I had a great week with my family and now I’m home. I am back in my normal environment. I’m back where everything is set up specially for me and my disability. I must say there is a certain relief I feel being home. I feel more secure in my own space. I know it is normal, this is my home, set up for me, by me, to meet my everyday needs. Of course I’d feel more secure here. Yet…

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Making my disability work in new environments

Making my disability work in new environments

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Not a bad place to be to write a blog post. It is a rare morning because it is actually only my sister and myself awake at this moment. She is in one chair reading her book with a cup of tea, I’m in the other with writing with a cup of coffee. It is so beautiful up here. She lives about 2 1/2 hours away from me in upstate New York. If we continued another 45 minutes we’d be…

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No more driving in traffic

No more driving in traffic

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It’s 8:10 in the morning and I have already cleaned up after the puppies, fed the those furry munchkins, completed my work out and cleared off all my email. Why do you ask have I done so much so early in the morning? My baby, who came home late Wednesday night, had to leave for the airport. She goes to her dad for the Christmas holiday and will be back on Thursday. Unfortunately, her dad always seems to schedule these…

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