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Tag: living with MS

2nd medical insurance assessment for home health services

2nd medical insurance assessment for home health services

My agency where my aid comes from that I been using for over a year is not acepting my insurance anymore. I have the option to change insurance companies and continue to use my agency or I just have to find a new agency. Right now with my current insurance, I receive five days a week, eight hours a day of home health aid services. I had an assessment last week and where they only offered me five days a…

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Life without coffee, I don’t think so.

Life without coffee, I don’t think so.

That is not a life for me. It isn’t even the caffeine that I need, although I am addicted to that now, it is the taste. Ever since I was young I loved the taste of coffee. When I’d go anywhere with my mom if they had coffee, I’d ask for it. She’d give me a cup of milk with a splash of coffee. I’d always try to sneak more in my cup. For as much as I love the…

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High dose biotin

High dose biotin

Since I was in the hospital, this is one of the pills that has changed. First it never made my weekly pill box, which was just a complete oversight. Second, the hospital doesn’t give that out. So I must say I haven’t correctly taken my high dose biotin for a week. It occurred to me, this morning, that this could be the reason I’m having difficulties regulating my body temperature since about Saturday. I finally started taking it again 3…

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High dose biotin

High dose biotin

Since I was in the hospital, this is one of the pills that has changed. First it never made my weekly pill box, which was just a complete oversight. Second, the hospital doesn’t give that out. So I must say I haven’t correctly taken my high dose biotin for a week. It occurred to me, this morning, that this could be the reason I’m having difficulties regulating my body temperature since about Saturday. I finally started taking it again 3…

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You are what you think

You are what you think

This whole hospital episode has put me in a little bit of a depression. I just haven’t been able to shake myself from it but I’m very aware that I’m in it. I don’t know if it is a side effect of the immense amount of antibiotics or if my anti-depressant got messed up last week. I know I ran out and I my prescription was picked up late but I was given them in the hospital. Maybe it just…

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Regulating body temperature with MS

Regulating body temperature with MS

I almost forgot this fact, well slightly forgot this fact. However my multiple sclerosis let me know it is still here in abundance. I got that crazy symptoms yesterday where I couldn’t regulate my body temperature. I’m sitting on my chair inches away from the AC and sweating. Sweat was literally dripping down my neck. Why? I wasn’t even moving. Normally this happens after I eat maybe something a little hot, this time it happened for no apparent reason. Guess…

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Ocrevus and the compromised immune system

Ocrevus and the compromised immune system

I’m happy to report I was discharged from the hospital last night. One thing I know, from my career working in nursing homes, hospitals like to discharge on Friday to make room for the weekend influx. The infection disease doctor would have held me to today but I really wanted to go and the main doctor was for it. So what did I learn from this? First of all this happened from a simple fall. The fall gave me a…

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Still in hospital but doing better

Still in hospital but doing better

I slept last night. That makes a huge difference. I also got them to stop the saline drip that wasn’t necessary and truthfully was torture for an MS patient with bladder issues. I was peeing every 20-30 minutes yesterday. I took a second bladder urgency pill I am prescribed last night which helped me sleep and cut the bathroom trips down to every few hours. I also used a commode next to my bed. It just went smoother. The doctor…

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Live from my hospital bed

Live from my hospital bed

So I ended up being admitted to the hospital. MS for 20 years and a little fall causes cellulitis and a skin infection and I ended up admitted. Last time I spent a night in a hospital was 19 years ago giving birth to my daughter. Same hospital I might add. I had a horrible night because of all the fluids they are pumping in my veins via IV caused me to need the bathroom often. Wouldn’t be terrible if…

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A swollen calf, cellulitis, a fall and MS

A swollen calf, cellulitis, a fall and MS

I’d love to say my saga is over, but I have a very bad feeling it’s not. I’ve been on my antibiotics for two days and the pain, which i thought subsided slightly, has not and my calf has swelled up tremendously. That’s causing a lot of pain. Something is very wrong!!! I think I’m going to have to go back to the ER later. I know this is crazy but they’re coming to do my windows this morning and…

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