Woke up to my phone ringing at 6:45. Thinking that it could be my daughter, I rolled to the floor instead of fighting with my stomach and arm muscles to put me in a sitting up position. By the time I got to the phone the answering machine picked up but my phone announces who is calling so I knew it wasn’t my daughter. They didn’t leave a message but by the name, I realized it was the aide they…
There’s a reason I have an aide for eight hours a day. There’s a reason I don’t work anymore. Sometimes I feel like I’m running a scam, that I should be working or I don’t need an aide eight hours a day. Especially when someone says lucky you. Let me explain something to you and myself, I’m not a lucky girl. I’m not a lucky girl that I’m on full disability and don’t work. I’m not a lucky girl that…
I haven’t talked about this topic in a while. Yep, I am still vegan, except my coffee. I’m still adding a little bit of half-and-half, so shun me. I just cannot handle that non-dairy milk alone in my coffee cup. Other than that, I have no issues, no cheats, no tastes no nothing. My weight? Well I gave up my scale and I checked in this month and it’s holding steady at 150.5 lbs. Not my thinnest number but definitely…
I’ve been so tired lately. I hate this feeling. I have been napping every afternoon for a few months now. Not always a long nap but at some point my eyes just have to close. The last few weeks have been really rough. I’m just wiped out doing anything. I had therapy today. I just am spent. I really want to crawl back into my bed and stay there for the day but I won’t. I’ve blogged everyday since I…
If you’ve suffered through this disease for any amount of time, something strange will happen in your body and you’ll ask yourself this question. It’s normal. Eventually the answer stops making you crazy and you just deal with it. However, I believe that the longer you have the disease the more you know what is or isn’t the disease. Even better you know what symptom is making other problems of yours worse. Like today, I realized my shoulder tendonitis has…
The topic of peri-menopause has been coming up with my friends because we are at or around that age. I was curious of the symptoms of peri-menopause which webmd has listed as: Hot flashes Breast tenderness Worse premenstrual syndrome Lower sex drive Fatigue Irregular periods Vaginal dryness; discomfort during sex Urine leakage when coughing or sneezing Urinary urgency (an urgent need to urinate more frequently) Mood swings Trouble sleeping Great, considering about 3/4 of that list are also MS issue…
These aren’t new symptoms they come and go. I just wish I knew why. I guess I wish I knew why with a lot of MS related things. Spasticity has been bad this week. I woke up Monday morning, or I should say didn’t sleep well Sunday night from pain. I always describe the spasticity in my back as if someone was twisting my tendons and muscles like you would spaghetti onto a fork, that’s how it feels. I ended up…
I worked in a nursing home for 13 years. I was in finance but I was in charge of the census daily. The census was how many people were currently in the home. It showed any new people that came in and anyone that left. It also showed diagnosis of these individuals. Urinary tract infection, UTI, would send more elderly people to the hospital than you could imagine. UTI in the elderly can actually look like early Alzheimer’s disease. They…
Technically I’ve had Multiple Sclerosis for 20 years at this point. I had my first case of optic neuritis in the summer of 1997 but I wasn’t officially diagnosed until February 1998. Doesn’t really matter at this stage of the game but it is why, like I said in my post yesterday, I don’t prepare for my neurologist appointments. Yesterday I saw my neurologist that diagnosed me in 1998. I remember back in the beginning at my check ups I’d…
There are steps recommended to prepare for your doctor appointment. Write down any new symptoms you’ve been experiencing if this is your ongoing doctor or all symptoms if this is a new doctor. Bring any test results you’ve received from any other doctors even if you don’t think they aren’t relevant. Have a list of all the medicine you are currently taking which should include anything non-prescription as well. Make a list of you questions or concerns before hand. If…
