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Tag: living with multiple sclerosis

Butternut Squash Mac n Cheese Sauce and black cherry sauce

Butternut Squash Mac n Cheese Sauce and black cherry sauce

I know another recipe, but you have to understand… I don’t cook!!!! This is a really big deal for me.  I’ve become a cooking queen. Ok maybe not a queen but a really eager learner. I’m enjoying trying these new things being vegan.  I’m sure vegans out there have made recipes like this thousands of times. I haven’t really cooked in about 10 years. My not cooking had really nothing to do with my multiple sclerosis. Back then it wasn’t…

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Multiple sclerosis past, present and future

Multiple sclerosis past, present and future

I’m a very big fan of Flipboard . I use it a lot,  I post my blog, I read articles and I find recipes. I save all my recipes in a magazine, you could click on my recipe magazine right down the side of this blog. Yesterday I came across a great article about The Story of Multiple Sclerosis and It’s Major Milestones http://flip.it/udMksk. I just want to highlight the milestones. 1824 1st clinical description of multiple sclerosis 1868 Multiple sclerosis…

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Forks over knives vegan Sheppard’s Pot Pie

Forks over knives vegan Sheppard’s Pot Pie

I wouldn’t post a recipe I haven’t either tried or was about to try. I made this recipe this afternoon with the help of my daughter. It was a little difficult for hands to whip and mash with multiple sclerosis, so I enlisted a sous chef. I must say, as I was preparing this dish, i really didn’t have high hopes. I thought it was going to taste bland. I am happy to say, I was wrong. It was really…

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Getting an aid getting help…accept, adjust, adapt

Getting an aid getting help…accept, adjust, adapt

For all the bad moments, there are always good moments. I would love to say that I’m feeling a lot better, that whatever is brewing with my MS is gone, but I unfortunately can’t.  However as always, I’m back to my normal, my usual somewhat positive self. I think that might have to do with the fact that my little sister is in from California and I’m seeing her today.  The sun is out, although that wind is howling, but…

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The multiple sclerosis hug symptom seeing my neurologist

The multiple sclerosis hug symptom seeing my neurologist

Over the years, a repeated cycle has always occurred when I went to an appointment with my neurologist.  I would see him and a week later I would have some sort of MS problem. I would up either back at his office, on steroids or at an MRI usually all 3. Over the past week I’ve been waking up feeling like I smoked a pack of cigarettes the day before. I’ve had this feeling before but never knew what it…

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Multiple sclerosis travel challenges, even if it’s close travels

Multiple sclerosis travel challenges, even if it’s close travels

Before I even start today’s blog, I need to give hug of condolences to my little sister, who put her dog Blueberry down yesterday. Blueberry now joins my Boomer over the rainbow bridge to wait for us with a few other past dogs she had. Lets once again discuss life with multiple sclerosis and its challenges. My daughter had to be in the city today to take a math placement exam for John Jay College. Since we had to be…

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High dose biotin going on 5 months patient thoughts

High dose biotin going on 5 months patient thoughts

http://sumo.ly/moZo I submitted a link to the biotin research/clinical study that showed that it may be helpful in people with progressive forms of multiple sclerosis. I am writing from my own perspective from taking the medicine. this excerpt is from a past blog post of mind explaining what my doctor has noticed  I get a 100mg pill I take 3 times a day from Ace pharmacy https://highdosebiotin.net . I just completed my 4th month somewhere in the middle of my…

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Multiple sclerosis symptoms on vacation

Multiple sclerosis symptoms on vacation

I’ve figured out the key to my feeling good everyday, or I should say as good as possible, DO NOTHING. Let everyone do everything for you so you are very rarely getting up and you could have really good days everyday. I would need to hire myself a full time assistant to do everything for me their duties would include working out every morning but transferring the benefit to me making and bringing me my cup coffee making and bringing…

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I hate insurance companies

I hate insurance companies

Here we go again. Another battle with the insurance. After I went to through the the battle with them and filed every appeal possible for my Rituxan, I was denied. Insurance denied saying it was not approved for multiple sclerosis. Although we filed all the necessary paperwork and they did approve it for others they would not approve it on my case. What is more than frustrating and this is that the new drug that is coming out for MS,…

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Today’s a new day

Today’s a new day

I’m certainly better than yesterday, I should start the blog off with that. Sometimes you hide how you feel inside because you don’t want to live feeling like that. Yes my life is hard. Yes things are a challenge. Yes it’s a sucky disease. Most people know this. I don’t have to reiterate that fact each day, so I try very hard not to. However it is the truth to MY life and it is like this 24 hours a…

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