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Tag: ms accommodation

Things that go bump in the night

Things that go bump in the night

I had this post written title one other time. I wrote it about being convinced I heard Boomer, my English Bulldog, after he passed away. I realize now that the things that go bump in the night is usually me. The biggest obstacle I’ve had, since I moved in the condo, is I sleep on the other side of the bed then I use to for the last 25 years. I always slept on the left side which, for all…

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Despite my MS, I am very happy

Despite my MS, I am very happy

I’ve lived in my condo officially two weeks today. I know I sound like a broken record and I apologize, but I just am so happy. I’m always blogging about all the bad things, living with multiple sclerosis and how tough it is, it’s just so nice to recognize the good things. Every day I say to my mom, I love this place thank you so much. I probably could say that every day and it would never be enough….

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Another one of those days, weeks, months with Multiple Sclerosis

Another one of those days, weeks, months with Multiple Sclerosis

Beautiful sunny day and I wake up with a headache. You know when you just haven’t felt right? That’s how I’ve been lately. I know, I know I have multiple sclerosis. Yes, that’s very true and the chances of it being just something with my multiple sclerosis is extremely high. However I just haven’t felt right. I’m not really sure what’s up. My doctor called with my blood work and again, everything is fine. I definitely don’t have Cushing’s, diabetes…

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When the simple isn’t so simple

When the simple isn’t so simple

I’m covered in ink. I have a new printer and I was finally putting it together yesterday. It has six different ink cartridges. As I was opening the ink cartridges, because my hands are all wacky I guess I was holding them wrong so the ink just kept getting on my hands. Thus, I’m covered with ink. I made a mistake with two of the cartridges and didn’t put them in right. Now I was left with the task of…

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Relapsing Remitting and Secondary Progressive MS, a combination of both

Relapsing Remitting and Secondary Progressive MS, a combination of both

It’s 20 years that I’ve dealt with my multiple sclerosis. When I first started doing research on my own illness, it was stated that most people go into the second stage of the disease after about 10 years. The second stage of the disease being secondary progressive MS. Most people start off in relapsing remitting and, at the time, it was said that 80 percent of people in this stage will go into secondary progressive around that 10 year mark….

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Adjusting 2 dogs to their new home

Adjusting 2 dogs to their new home

For first time ever, there really might not be a post for me tomorrow. Tomorrow is my move day. As of tomorrow, everything is going to the condo including Zoey and Marshmallow. I’m a little concerned about these two. I would’ve liked to have had them there before tomorrow but it didn’t work out. I was going to bring them over but it turns out my painter is allergic. I know for them it would’ve probably been better if they…

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The reality of my situation

The reality of my situation

It’s been four days that I have owned the condo. However it’s only been three days that my new scooter has been in my condo. I have to admit it, life is a lot easier in the scooter. I’m getting tired doing the walking. Every day is a struggle and it’s just getting harder and harder. My steps are getting slower and slower. I do the simplest task and I am just completely wiped out. Then I have to walk…

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Snowfall and Multiple Sclerosis

Snowfall and Multiple Sclerosis

The first snow is supposed to fall today in New York. I always loved the snow. I never liked driving in it but I loved to look at it. I love when it’s quiet and everything is white. You look outside the street the world just seems transformed and peaceful. Everything appears so different. However after that snow, what a mess. There are huge piles of snow because the plows. There are always parking spots that are taken because of…

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I got a new scooter/wheelchair

I got a new scooter/wheelchair

I always call it a scooter, but technically I guess it’s a wheelchair. I really wanted the hoverRounds MPV5. When I called it was over $4000 and of course my insurance wouldn’t cover it. My thinking was I was going to wait until I became Medicare eligible and get it then. Medicare pays for it. The problem with that outlook is first I’m not gonna be eligible for Medicare until, two years after the start of my disability which is…

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It’s another Monday

It’s another Monday

These days come fast, don’t they? I have to say, it’s been very busy for me. Good busy buying stuff for my new condo, but busy. I’m exhausted and it’s Monday I didn’t even do anything. I was out both days this weekend shopping. I had buy new locks the door. May not sound like such a big deal, but I have multiple sclerosis and it’s getting worse. I fumble a lot with keys and sometimes the dexterity in my…

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