I was thinking this weekend about when I worked. I’ve read a few MS blogs where people discussed when, if ever, do they disclose their disease to their employer? If you are new to my blog, I was diagnosed with multiple sclerosis when I was 26. I’m 50 years old now. I became disabled when I was 44. That left a lot of years when I worked. I held my last position for 13 years with the same company but…
Happy hump day. Another day, another week. This week was a little different for me because my daughter is home for a visit. I love having her home. I love her energy in the house. I love how she climbs into my bed when she wakes up and is always in my bed before I go to sleep. I miss her when she leaves until I get use to her being gone again. Right now I get to enjoy her…
Friday again. It was a week ago I wrote about weather changes once again affecting MS symptoms. https://multipleexperiences.org/2022/06/17/mentally-strong/. I had changed PT from Monday to Wednesday because I was having a rough day Monday. Well I guess I was having a rough day Wednesday too. I couldn’t walk five steps. So much for my goal of walking the hallway and back to my condo door. It wasn’t even close. I honestly couldn’t walk a few feet out my door. I…
Some days are better than others. I walked the hallway again yesterday and it was so hard. Ok, it was hard the first time I did it but it was so much harder yesterday. My right leg, which is normally the leg that gives less issues, was very difficult to move. It was difficult from the hip flexor. I had problems moving the leg forward. My left leg, which normally drags, has difficulty clearing a step without my foot impeding…
I’m actually writing this on Thursday evening. I had a long day. Since the change in my aides shifts, I am up at 7am. This morning I was up at 5. I had one of those MS symptoms that plague me whenever it is a inconvenient time. My feet were in pain. More like my heels. I felt like pins were simultaneously sticking into both my heels at the same time. Neuropathy. I know it well, but this time it…
I was determined to get into my comfy chair. Ok getting in isn’t the problem, it’s getting out. The chair is not only low but mushy. I don’t have anything very solid to push myself up to a standing position. I tried to angle the wheelchair in front of me, using the chair’s arms. Unfortunately, that didn’t help either. The end result was being lifted up by both my physical therapist and the aide. I was discouraged. Getting into, excuse…
I’m not grey anymore. My daughter dyed my hair yesterday. A grueling experience. Not because of her, but I had to sit in my wheelchair for an hour. I have been really tired this week. On Monday I wrote I blogged I wasn’t having any reactions to my Rituxan infusion. Today I have to admit I might be having a reaction to my Rituxan infusion. I am definitely feeling run down. What is really worse is my hands. I’m not…
The switch with the new aide actually went pretty flawlessly. My current aide actually had a lot to do with that. She really took the time to show the new aide around. She didn’t have to do that. It wasn’t an aide from her agency. It was an aide that was replacing her. I think I was more impressed with her this week than I have been the entire time she’s been with me. I actually was a little sad…
I didn’t write it but looking back at my episode with physical therapy last week https://multipleexperiences.org/2022/04/22/breathing-issues/, may have been a panic attack. It seems that this week things aren’t going much better. I was able to stand right up on Sunday. I got into my wheelchair. I ate dinner at the table for the first time in ages. The next day I couldn’t stand up during physical therapy. This was the third visit that I felt was wasted. Medicare only…
I actually got out of bed and ate dinner at the table last night. I am tired of being in this bed. I might not have endurance. I might not be able to take a step. I can usually transfer to my wheelchair with some assistance. Key word is assistance. The aides that I currently have, that “assistance” is questionable. My weekend aide is lovely but her English isn’t good. I would have to translate instructions to her for everything….
