One thing I can say about myself is I’m not a slacker. If I say I’m going to do something, I’m going to do it. I wrote about my weakness in my legs the other day My muscles are getting weaker. In the blog I realized I had to do something. So I first thought on safety. I can’t fatigue myself to the point I can’t transfer. My daughter has been so helpful when my aid isn’t around but she’s…
I have to be honest, my legs are super tired by the end of the night. I’ve been having some real issues getting myself into bed. Luckily my daughter has been around to assist and readjust my legs. My original thoughts were why? I’m resting most of the day after I exercise. Then it occurred to me, I’m moving even less now than the little I was moving before. This is bad. The more I’m in hibernation, the weaker I’m…
Last week I wrote a post about all my different spasms. My multiple sclerosis spasms. I was sitting around yesterday as my right leg was doing the one type of spasm that you could actually see. So I got it on video .img_2066-9 This is why I take so many medicines at night. If I have this spasm while I’m trying to sleep, I won’t. It does happen and incidentally I have many blogs dedicated to my lack of sleep….
So I took an extra triple magnesium capsule on my way to the bathroom yesterday. I can normally swallow pills without water. Comes from years of taking pills. I wasn’t able to actually swallow the capsule for some reason but I needed to use the bathroom. I left it in my mouth for the second until I could get water from the sink. I just didn’t plan on one of my rock skipping ass off the toilet bowl moves. I…
I’m going out into the zombie apocalypse tomorrow. Wish me luck. It will be my first time out in almost two weeks. I’ve been very good at hiding myself away to keep safe but now I must make an appearance. I finally got an appointment for a wheelchair evaluation at my physical therapy office. I’ve waited four months to be seen. I couldn’t decide to not go. They assured me that the staff is in masks and the gym is…
I went through my blog posts because I couldn’t remember how many times I’ve done Rituxan. I made the switch from Ocrevus back to Rituxan for the March 2019 infusion. This is my 3rd time. I was on Rituxan at an earlier time but was forced to change when Ocrevus came out. My insurance company, at the time, would not authorize Rituxan because it was not approved for multiple sclerosis. I than changed insurance companies once again and asked to…
So after a second day of consuming a regiment of oregano oil and using Doterra Breathe, I got into bed sneezed once and never sneezed again. Achoo-ing through the night. Woke up fine. So strange!!!! I’m doing much better with the Provigil. I’m so happy to report. I am no longer waking up exhausted as if I never slept. That has been such a huge difference that I’ve been able to get back to my life. I have still been…
I had a nurse evaluation yesterday for the agency. Nothing shocking, mostly paperwork stuff. My medications were listed for the dosage and times I take them. I’m taking 9 different medications at 48 years old. That’s a lot of pills. If you include the vitamins it’s 17. A crazy number yet they all serve a purpose and that’s what the evaluator and I were discussing. Most I take at night because they cause drowsiness so I got the warning about…
Day two of waking up and not feeling tired. I can’t even put into words how great that is. I am starting to feel more like myself. I still was in bed by 8 yesterday and sleeping before 9. I also had no strength in my legs and had to transfer directly from my wheelchair to my bed. Yet all that is ok because I woke up peppy and smiling. I woke up in good spirits with energy and it…
