There is only one answer to this, when you absolutely have to!!! Stay on your feet as long as you can. Once you’re in a wheelchair full time your legs will weaken making walking more and more difficult. I know this all but here’s my problem, walking is getting more and more difficult for me. I have both good and bad days but let’s say I go to the small grocery store and walk with my rollator, I can walk…
I have no idea how but thank god, I can still drive. I don’t drive much and I don’t drive far so when I’m in my car I really enjoy it. Especially on days like today when the sun is shining and I have the sunroof open. I love listening to my music way to loud. I use to love smoking and driving but I quit years ago. My car has brake hold. A wonderful feature that holds the brake…
I think for anyone that has had a chronic illness for any length of time has sat and remembered what it was like before the illness. Or at least what it was like before it got really bad. We remember when we used to dance, run, or have any exorbitant amount of energy. We remember when we taught our child maybe to ice skate or ride a bike. Maybe you remember Sunday afternoon hikes up the mountain. All these wonderful…
Happy Friday to everyone. All is right in the world again. I am awake, although slightly reluctantly. I’m on my couch with a dog on either side of me. My daughter is home for the weekend. I saw her for a total of 10 minutes yesterday, from the train station back to house before she left again. That’s ok, I’ll see her today. I have an aide coming today. I’m going to get some soup cooked and maybe a vegan…
Woke up to my phone ringing at 6:45. Thinking that it could be my daughter, I rolled to the floor instead of fighting with my stomach and arm muscles to put me in a sitting up position. By the time I got to the phone the answering machine picked up but my phone announces who is calling so I knew it wasn’t my daughter. They didn’t leave a message but by the name, I realized it was the aide they…
There’s a reason I have an aide for eight hours a day. There’s a reason I don’t work anymore. Sometimes I feel like I’m running a scam, that I should be working or I don’t need an aide eight hours a day. Especially when someone says lucky you. Let me explain something to you and myself, I’m not a lucky girl. I’m not a lucky girl that I’m on full disability and don’t work. I’m not a lucky girl that…
I’ve been so tired lately. I hate this feeling. I have been napping every afternoon for a few months now. Not always a long nap but at some point my eyes just have to close. The last few weeks have been really rough. I’m just wiped out doing anything. I had therapy today. I just am spent. I really want to crawl back into my bed and stay there for the day but I won’t. I’ve blogged everyday since I…
If you’ve suffered through this disease for any amount of time, something strange will happen in your body and you’ll ask yourself this question. It’s normal. Eventually the answer stops making you crazy and you just deal with it. However, I believe that the longer you have the disease the more you know what is or isn’t the disease. Even better you know what symptom is making other problems of yours worse. Like today, I realized my shoulder tendonitis has…
These aren’t new symptoms they come and go. I just wish I knew why. I guess I wish I knew why with a lot of MS related things. Spasticity has been bad this week. I woke up Monday morning, or I should say didn’t sleep well Sunday night from pain. I always describe the spasticity in my back as if someone was twisting my tendons and muscles like you would spaghetti onto a fork, that’s how it feels. I ended up…
I worked in a nursing home for 13 years. I was in finance but I was in charge of the census daily. The census was how many people were currently in the home. It showed any new people that came in and anyone that left. It also showed diagnosis of these individuals. Urinary tract infection, UTI, would send more elderly people to the hospital than you could imagine. UTI in the elderly can actually look like early Alzheimer’s disease. They…
