When transitioning to a wheelchair be sure to see an OT for evaluation
I completely understand why I have the been in the wrong wheelchair all this time. I had a very different experience this morning in preparation for a new wheelchair. I was asked questions to start with. Questions about my home. What accommodations I have done in my home thus far? What is my bathroom shower set up? What is my bed I sleep in? How wide is my kitchen? What difficulties do I have in the bathroom with my current…
I’m going out…my wheelchair evaluation
I’m going out into the zombie apocalypse tomorrow. Wish me luck. It will be my first time out in almost two weeks. I’ve been very good at hiding myself away to keep safe but now I must make an appearance. I finally got an appointment for a wheelchair evaluation at my physical therapy office. I’ve waited four months to be seen. I couldn’t decide to not go. They assured me that the staff is in masks and the gym is…
A week after Rituxan
I went through my blog posts because I couldn’t remember how many times I’ve done Rituxan. I made the switch from Ocrevus back to Rituxan for the March 2019 infusion. This is my 3rd time. I was on Rituxan at an earlier time but was forced to change when Ocrevus came out. My insurance company, at the time, would not authorize Rituxan because it was not approved for multiple sclerosis. I than changed insurance companies once again and asked to…
A blister formed after Rituxan infusion again
On Wednesday I was feeling something itching me under me right breast. I looked many times but didn’t see anything. I was on high alert looking for blister under my breasts. I was very concerned over a repeat episode of the side effects that happened last September. https://multipleexperiences.org/2019/09/17/blisters-on-breast/?preview=true&frame-nonce=b3345af611. When my aid looked on Thursday she was able to see a few little bumps in the area like a rash. We used a little Neosporin on the area. Last night I…
Welcome to my world
Another day at home except this time I’m like many others in the world. Welcome to my life. This is definitely the time to binge TV, read a book or 8 and maybe start a jigsaw puzzle. I’m hanging with my puppies, in my chair, gazing at the water and listening to the construction still going on near my condo. It’s comforting to know that things haven’t stopped completely with this virus. I am still feeling tired from my Rituxan…
Coronavirus and MS video
I watched this video yesterday and wanted to share it with everyone. It discuss relevant information about this virus and MS. It discusses the drugs we take and the possible risk factors involved. I actually learned something about my own drug and how it effects my immune system. Hope you find it helpful Coronavirus and MS: *THANKING THE MS COMMUNITY FOR SHARING YOUR QUESTIONS AND CONCERNS* with Aaron Boster, MD Neurology-MS SpecialistandDamian Washington, Patient Leader CLICK BELOW TO WATCHSTAY INFORMED- UNDERSTANDING MORE ABOUT…
Rituxan infusion successful
I’m happy to report that I have no blisters today. I had three little red marks last night that looked almost like welts. This morning I only saw one. I can’t even begin to tell you the relief that was for me. I will be able to continue Rituxan until something better comes along. That isn’t the greatest statement but it is better than the alternative of putting me on a drug that might not work for me. The infusion…
Rituxan infusion on Sunday
I’m a bundle of nerves which is so unlike me. Between my daughter’s school having a positive case of the virus and choosing to let her stay in Albany My daughter school has a positive case of the coronavirus I feel worried. I’m the mom, I’m supposed to protect my kid but instead I’m keeping her away from me, protecting myself. She’d rather be there, thankfully, but I know the decision is also for my own benefit. My daughter will…
Rituxan infusion coming up
Good morning and happy hump day to all. Got through the day of exhaustion from therapy yesterday. At least I had a justifiable reason for being fatigued. I even made it to my hair appointment and no more grey hairs, at least for the next 5-6 weeks. My wonderful hair dresser, who is also a good friend, even blew out my hair for me saving me a step so I didn’t have to deal with it myself. I’m almost due…
