Technically I’ve had Multiple Sclerosis for 20 years at this point. I had my first case of optic neuritis in the summer of 1997 but I wasn’t officially diagnosed until February 1998. Doesn’t really matter at this stage of the game but it is why, like I said in my post yesterday, I don’t prepare for my neurologist appointments. Yesterday I saw my neurologist that diagnosed me in 1998. I remember back in the beginning at my check ups I’d…
There are steps recommended to prepare for your doctor appointment. Write down any new symptoms you’ve been experiencing if this is your ongoing doctor or all symptoms if this is a new doctor. Bring any test results you’ve received from any other doctors even if you don’t think they aren’t relevant. Have a list of all the medicine you are currently taking which should include anything non-prescription as well. Make a list of you questions or concerns before hand. If…
Yesterday I wanted to write a post about which medicines are working. I woke up yesterday feeling great, great as far as a good MS day. I worked out Saturday, Sunday and Monday having no pain in my arm or shoulder. What was more amazing was my stamina. I was able to get through each workout. Even though I napped all three days, I’ve been napping most afternoons when I haven’t worked out Anyway. What I noticed is my legs…
Go Me!!! I haven’t worked out on my own since sometime in June thanks to my shoulder tendonitis. Against my will, every time I tried to do something I felt it in my shoulder and I knew if I continued, the pain would be back until I ended up needing another cortisone shot. A shot I’m only allowed to receive once every 3 months. It killed me to stop. I worked out 6 days a week for years. I had…
I have this wonderful woman that comes to my home every week to work me out. She is an MS fitness trainer. She doesn’t have me doing weights or cardio, she has me working with kickballs and rings and my own body weight to work and move muscles that are weak and damaged. Muscle movements I would never go near because they are hard. Lots of core work. My very first attack back in 1998 left my left leg with…
I don’t like to complain in my blog. Ok, sometimes I do. I live with a chronic illness of multiple sclerosis everyday, eventually you break and post your disgust. I’d like to say that I don’t do it often. That being said, I have to complain this morning over just some stupid stuff that is really all resolved now. It would have been my blog post yesterday but I had that migraine and I just couldn’t focus to write. It…
Good morning and happy Monday. In the US its Labor Day and most people are off from work. Today marks the end of summer. School usually starts tomorrow for most kids. To me, it’s another day. I don’t work anymore. It’s been well over a year, closer to two years and I’m still adjusting to that fact. You’d think I’d have all this time on my hands but everyday seems to fly by no different than if I was on…
I had to be honest and let others know in case it happens to you, I haven’t been feeling great since my Ocrevus infusion on Wednesday. I expected the day of the infusion to feel lethargic and tired because of the Benadryl coming through the IV, but I am still feeling that way. It is Friday morning and anyone with MS will understand me when I say my bones feel so heavy. My skin is super sensitive which is definitely…
Yesterday was the second part to my Ocrevus infusion. My next appointment is February 26, 2018. The all the headaches that it took me to get on Ocrevus and then all the headaches it took getting the infusion site, I’m happy to say I am done with this infusion. As expected, the infusion was smooth I had no allergic reactions of any sort. Other than being extremely tired from the Benedryl that goes through the IV line, I felt fine….
I’ve had my travel scooter I use for years. It’s very light, folds into three parts and is perfect when I need to travel somewhere. However it is nothing like my electronic wheelchair. That one is much heavier, turns on a dime, but isn’t portable because each part is extremely heavy. Yesterday was day one with my daughter in the city. Her and I took my travel scooter by train. When I get into Pennsylvania Station, it’s always busy with people…
