People write in their journals all during this event, I blog. Partially because my penmanship isn’t so good anymore and my hand tires out and because this is where I work out my sh@t. Today was fine until the last ten minutes before lunch. We did a soul retrieval meditation where you find your inner child and hold them close, becoming their protector. Keeping them safe, loved and cared for. Bringing your inner child back into your heart. This is…
A 45 minute trip from Saugerties to eat breakfast at the greatest pancake place ever. I did come off Keto for the morning and it was worth it. I had the greatest chocolate chip pancakes. The place was packed. We haven’t gone there in over 3 years because my sister hates the wait, trip and calories. To me, it was worth it. However the most amazing part of this whole thing was when I walked in sitting down was my…
What started out as a good day ended pretty horrible. Getting the last few items together for me trip, I ended up severely exhausted. I don’t even know if exhausted is the right word. I had to get something in my daughter’s closet for her and it required me to go to the floor. I really knew this was bad because I was so tired, I just didn’t realize how bad. I couldn’t get up. I didn’t even have the…
When was the last time you had one of those? I went into bed my usual time, around 9:30. I usually watch tv a little before closing my eyes. I feel asleep and slept until 3:30 before I had to use the bathroom. That is a record for me. A long stretch. I feel back asleep and woke up at 7:30 and I was awake and refreshed not groggy and still sleepy as I have been for many mornings now….
What fun yesterday was. My MS friends and I joined a beginners class to learn mahjong. I must admit I did have a lesson before with my mom and my girlfriends which was a lot of fun but it was difficult organizing everyone to get together again. I’ve been wanting to learn mahjong for a long time. I originally brought the idea up to my MS girls because we are around during the day and I thought it would be…
I bought myself a gift, another Fitbit. This one is the flex2 which can track swimming. One can argue the fact that tracking steps and activity for someone who has multiple sclerosis is kind of pointless, and it may be true but I wanted to see. I am curious on a few points: sleeping, activity and steps. I used to always track how well I slept through my Fitbit. It shows how much you were restless and how much you…
If your doctor has suggested Ocrevus you are certainly moving up the ladder of disease modifying drugs for multiple sclerosis. With each of the IV drugs especially come side effect risks. Ocrevus is no exception. The most serious they show is: Risk of cancers (malignancies) including breast cancer. Follow your healthcare provider’s instructions about standard screening guidelines for breast cancer. That’s a pretty serious risk to consider. They also talk about PML Progressive Multifocal Leukoencephalopathy. This is the brain infection caused…
A very interesting article found on the web from Science Magazine written by Mitch Leslie. This article has been copied below. https://www.sciencemag.org/news/2018/10/elusive-molecule-sparks-multiple-sclerosis-may-have-been-found Our immune cells normally pounce on intruding bacteria and viruses. But in multiple sclerosis (MS), immune cells target the nervous system instead. Now, researchers may have pinpointed a long-sought molecule called a self-antigen that provokes these attacks, pointing a way toward potential new treatments. “The work is monumental, and it’s tantalizing,” says neuroimmunologist Hartmut Wekerle of the Max…
Not fatigued, yet, but I have physical therapy so give it time. The weather is so wacky and I think that’s why. One day it’s cold, rainy 65 degrees and I’m wearing a sweatshirt. The next day it’s 75 and humid and I’m in shorts. My hair is frizzy again in the middle of October. Amazingly I haven’t had migraines. An absolute blessing. I haven’t had one in at least a month (knock on wood). I’d think with these wacky…
The sneezing started last night. I am starting my regiment of Doterra Oregano and OnGuard today. Hopefully I could knock it out before it starts. I take Ocrevus so common colds can take longer to leave my system but since I started with the natural oils I’ve been very fortunate not to have that issue. I wrote a lot of information about the oils in this post https://multipleexperiences.org/2018/09/15/schools-back-reminder-about-oils-doterra/ or check out my page https://multipleexperiences.org/doterra-oils/. The common cold could put you…
