It is beautiful out although slightly chilly. That doesn’t stop me from opening windows to let some fresh air through. I don’t mind the chill, it feels nice because the sun is hitting this side of the building. Once the sun starts to move I will start to freeze. The temperature is only 46 degrees out, not really windows open weather. It’s that sun hitting so directly that adds so much heat. It feels really nice. I’ve been feeling pretty…
I’m thankfully doing better today because I slept. Never under estimate the power of a good nights sleep. I was able to exercise a little this morning. I purposely decided to keep it simple and just do my MS gym exercises. There was an entire revamping of the MS gym and I actually started the from the very beginning again. That means the exercises aren’t as intense. I was pairing them with chair cardio everyday but knew that wouldn’t be…
I haven’t slept well for two nights now. I spent the first night with those belly issues and last night with bladder issues. I was using the bathroom every hour. I honestly think this was somehow related to the infusion. I have had nights where I’ve used the bathroom frequently but every hour is something that is a rarity. Yet that was my night. This is the second day in a row that I’ve hit my 12 hours of stand,…
The MS gym rolled out a brand new site and program yesterday. Based on the new program and functional maps, I was supposed to go back to the beginning again. I just completed the standing strong program. Even though I completed the program, I would have repeated the phases because I was far from mastering the exercises. I have been with the gym for about a year now and I have done each program according to the old functional maps….
Well unfortunately I had a tough morning. It seems my stomach is still having issues. I had to shower upon waking up this morning. I wish I knew what was causing all of this unsettling in my belly over the last few weeks. I’m scared to take anything because the fear of it binding and I experiencing the alternative is just as bad. However this leads me to make many trips necessary and unnecessary to the bathroom in fear of…
Ive had pretty significant changes that have been happening regarding my multiple sclerosis symptoms lately. In the grand scheme of things they might not seem significant but for me they are. My feet are pointing and flexing. They actually do it even better than this little video but I took this right after I worked out. My chin muscles are moving my feet really well. Not bad for someone with foot drop. I started phase 2 of standing strong and…
I’m doing a new program in the MS gym called standing strong. Yep has a lot to do with standing. I started phase 1 with my therapist. It had a lot of floor work as well as chair work. So I started integrating it with my previous program. I’m done with therapy but I really wanted to continue with this new program so I was determined to find something that I could make work without needing someone’s assistance to get…
Well good morning to everyone. Happy Monday. I am dictating this through my new iPhone. Hopefully the dictation goes better than the old phone, after all the issues I’ve had dealing with the purchase of this new phone, at least something needs to go right.You can’t make this up….  I must say, so far, it’s working really well. I’ve had a tough weekend, I’m still just not feeling great, not sickness wise, more MS issues. i’ve slept in every…
I wasn’t feeling well all day yesterday. I actually napped most of the day. Well I had the TV on and my eyes closed. For me that’s pretty much napping. I just didn’t feel well. No fever, no aches but my muscles felt sore. That was the best way for me to describe it. I went to sleep early but unfortunately that didn’t go off quite as I intended. At about 2 o’clock I was woken up with bathroom issues….
Hello again, it is once again Monday. I’m very happy to say my aide will be here today. Unfortunately, it will take me some time to recover from the last week doing it mostly alone. Even having food prepared and only doing what I absolutely had to do, it was a rough week. There is a reason I have an aide. I sometimes feel like it is really just to babysit me but truth is the amount of energy it…
