Infusion or no sleep is kicking my ass

Infusion or no sleep is kicking my ass

I haven’t slept well for two nights now. I spent the first night with those belly issues and last night with bladder issues. I was using the bathroom every hour. I honestly think this was somehow related to the infusion. I have had nights where I’ve used the bathroom frequently but every hour is something that is a rarity. Yet that was my night. This is the second day in a row that I’ve hit my 12 hours of stand, according to my Apple Watch, by 2pm.

I am bruised and cut everywhere from my mishaps from yesterday. Hoping for a better tomorrow. Yet I was able to add a few more this morning. I got my sweatshirt caught on the wheelchair joystick and ran myself over. I ended up somehow getting my foot caught between the two wheels. I had to be very methodical to get my foot out because I could have easily rolled over my ankle with the big wheel. It took me a while but I eventually got myself free. Nothing is easy when neither of your legs work the way they are supposed to.

I decided not to workout today which says so much in itself. I just know that without working out, I shouldn’t be as tired as I am right now. I am having such issues even transferring back to my wheelchair to go to the bathroom. My body is completely on empty and it is just after 2pm. There are still many more hours to this day. I don’t know if it’s the lack of sleep or the infusion but it’s been rough. I certainly know it could be either or both. The infusion knocks you out too. I have just really felt half beaten up and wrung out like a dish rag. Still hoping tomorrow is a brighter day.

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