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Tag: Rituxan infusion

How fatigue affects life

How fatigue affects life

I’ve been so tired lately. I never really took in to account how my body would react to work being done in my place. I knew I would be shifted around slightly but didn’t think it was a big deal. I was clearly wrong. By the time the afternoon comes around I’m struggling to get myself to the bathroom. I’m back to dreading every time the need comes. Sometimes I’m so tired that the hesitancy I talked about recently Bladder…

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I’m feeling ok, another infusion in the past

I’m feeling ok, another infusion in the past

It is beautiful out although slightly chilly. That doesn’t stop me from opening windows to let some fresh air through. I don’t mind the chill, it feels nice because the sun is hitting this side of the building. Once the sun starts to move I will start to freeze. The temperature is only 46 degrees out, not really windows open weather. It’s that sun hitting so directly that adds so much heat. It feels really nice. I’ve been feeling pretty…

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Infusion or no sleep is kicking my ass

Infusion or no sleep is kicking my ass

I haven’t slept well for two nights now. I spent the first night with those belly issues and last night with bladder issues. I was using the bathroom every hour. I honestly think this was somehow related to the infusion. I have had nights where I’ve used the bathroom frequently but every hour is something that is a rarity. Yet that was my night. This is the second day in a row that I’ve hit my 12 hours of stand,…

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Rituxan infusion pre-meds sickness

Rituxan infusion pre-meds sickness

Hopefully I am through the worst of it now. Yesterday was pretty bad. I believe my exact words to my mom were, “I am four breaths shy of death”. There wasn’t a spot on my body that didn’t hurt. It’s a good thing these infusions happen every six months because you have plenty of time to forget. I can even go back and look at past blog posts and see exactly how I felt. However, it’s a little different each…

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Feeling fine still but attitude needs an adjustment

Feeling fine still but attitude needs an adjustment

So far I feel fine since my Rituxan infusion, although I am all too aware it won’t stay this way. After being on Rituxan or Ocrevus for the last 4 years you kind of get a feel for these things. I do have to say I don’t feel bloated from the infusion. I think it is because I drank so much water. For some reason my mouth became Sahara desert dry during and the night after I received the medicine….

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A IV port

A IV port

It took 4 needle sticks to get my vein for the IV yesterday. Not only stressful but painful. I may have dulled sensation on my skin but it certainly still feels needles. This was my nurses 5 infusion with me. Each time it is getting harder and harder to start the IV. Yesterday this process took us almost an hour. We had to break out the heating pad to try to warm my arm up. It eventually helped, but it…

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Rituxan infusion day March 2021

Rituxan infusion day March 2021

It’s the day. It’s finally here. I’ve been doing these infusions for so many years now. I was on Tysabri for a few years prior. You”d think I’d be totally accustomed to these things by now, but I’m not. I get really anxious before the infusion starts. Partially because finding my veins for an infusion is not easy. If I’m doing blood work it’s very rarely a problem. However, whenever they have to find a place to keep an IV…

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Rituxan infusion setup, far from a smooth path

Rituxan infusion setup, far from a smooth path

My Rituxan infusion has once again been a complete disaster getting the necessary supplies and drugs. I would love to blame it all on CVS specialty pharmacy but my doctor’s assistant is partially to blame. What started a month ago has come down to the wire yet again. My third box of supplies has just been delivered this morning. All I can say is thankfully I know how my drug is administered. If I didn’t, this would’ve been a bigger…

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Just a Wednesday

Just a Wednesday

Is it really Wednesday already? This week seems to be flying by. I received my Covid test results this morning and I was negative as I expected. My county passed down new protocols for someone that was vaccinated. If they come into contact with a person who tested positive for Covid they don’t need to either quarantine or test providing they are asymptomatic. The Covid tracer people are still tracking me daily. I don’t know what to follow so I’m…

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Too much stress, not enough sleep

Too much stress, not enough sleep

I woke up with a killer headache. I use the word woke up very loosely because I haven’t been sleeping well and last night was no different. On a good note, I should reach my 12th hour of standing goal by 2pm. I’ve been going to sleep to a meditation track every night since last Friday. I started off sleeping great but then my daughter tested positive for Covid and I’ve bees stressed. My daughter is positive for Covid. My…

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