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Tag: Ms progression

A horrible and humbling outing

A horrible and humbling outing

My first social outing since March I was having dinner at my mom and stepdad’s house. It was the first time I was seeing my mom since a quick drive by in the beginning of April. It was the first time I was seeing my sister and brother-in-law since February. We were all getting together to celebrate my daughter’s 21st birthday which is on Wednesday. We were having dinner outside. She has a beautiful backyard but definitely has challenges for…

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The strange MS symptoms back again

The strange MS symptoms back again

I haven’t talked about my MS in so long. It hasn’t been too bad, thankfully. I did end up on the floor after I worked out in the evening. Totally Rocked This I had this great work out but it did make me extremely tired and my recovery wasn’t quite on point. So transferring into my wheelchair didn’t go so well. I didn’t panic, or cry. It took me a little bit but I eventually got myself up and I…

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Bladder issues

Bladder issues

I’m not sure what exactly is going on with my bladder these days. I know I have issues, had them for years, but they’ve seemed somewhat worse over the last few weeks. I am not sure if I don’t have some kind of bladder infection. The problem is that is varies day to day, something bladder infection tend not to do. However between my water pills and Toviaz, who knows. Urinary tract infections don’t always cause signs and symptoms, but…

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No fatigue lately

No fatigue lately

I haven’t been sleeping great. I’m up all night either using the bathroom or unable to get the right temperature. However I still wake up in the morning pretty bright eyed abs chipper. Starting each morning with some puppy love helps that situation. I’ve put in some great workouts in the AM. Yesterday I did 52 minutes. That pretty intense especially since I didn’t go to bed until after 10:00. That’s when I realized that I’ve been doing really good…

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Hot, sweaty, cold and warm

Hot, sweaty, cold and warm

I’ve had so many blogs about this topic. Regulating my body temperature is not going well these days. It can be very frustrating. The sweating happens a lot after i eat. It is because my food is hot. The hot food causes my body temperature to rise and then I start sweating. Really makes no sense. Most normal people eat a hot meal and don’t have any issues. Not me, I eat, I get overheated. WTF!!! It happens all the…

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I’m not disabled, I’m mom

I’m not disabled, I’m mom

I did well yesterday My words are my actions. I managed to use the walker until after 2pm. I completed 3 sets of 10 squats but I can admit I pulled myself up on the last few. I was done!!! I’m happy to say that I recovered and had strength to get myself up into my bed without assistance and without lowering the bed to the flat position. I was proud of myself. My daughter comes into my room every…

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My words are my actions

My words are my actions

One thing I can say about myself is I’m not a slacker. If I say I’m going to do something, I’m going to do it. I wrote about my weakness in my legs the other day My muscles are getting weaker. In the blog I realized I had to do something. So I first thought on safety. I can’t fatigue myself to the point I can’t transfer. My daughter has been so helpful when my aid isn’t around but she’s…

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My muscles are getting weaker

My muscles are getting weaker

I have to be honest, my legs are super tired by the end of the night. I’ve been having some real issues getting myself into bed. Luckily my daughter has been around to assist and readjust my legs. My original thoughts were why? I’m resting most of the day after I exercise. Then it occurred to me, I’m moving even less now than the little I was moving before. This is bad. The more I’m in hibernation, the weaker I’m…

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What a multiple sclerosis spasm looks like

What a multiple sclerosis spasm looks like

Last week I wrote a post about all my different spasms. My multiple sclerosis spasms. I was sitting around yesterday as my right leg was doing the one type of spasm that you could actually see. So I got it on video .img_2066-9 This is why I take so many medicines at night. If I have this spasm while I’m trying to sleep, I won’t. It does happen and incidentally I have many blogs dedicated to my lack of sleep….

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FDA approves Zeposia (Ozanimod) for Multiple Sclerosis

FDA approves Zeposia (Ozanimod) for Multiple Sclerosis

Amidst all that is happening in the world, things are still happening in the world of MS. Another oral medication for the treatment of MS. Read the article here: https://multiplesclerosisnewstoday.com/news-posts/2020/03/26/fda-approves-zeposia-ozanimod-oral-rrms-active-spms-cis-therapy/

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