My neurology visit was uneventful yesterday for the most part. He did a quick exam and during the exam he said I always forget how myelopathic your MS has always been. He always says that to me. First I had a remember what myelopathic meant and then I remembered what he meant. Myelopathic is referring to the spinal cord. What my doctor means is that my MS is in my spinal cord not in my brain. All my symptoms fall…
It’s Friday and I’m exhausted. A shocking statement from me, right? Why do I feel like this week was so long? It just feels like I did a lot this week when I really didn’t. I am not even done. I’m off to my neurologist this morning. This is my normal MS neurologist, not the specialist. Neurologist was as expected. This is my neurologist that diagnosed me almost 22 years ago. He treats me more for my various symptoms where…
I had another fall the other day. I wouldn’t say it was a bad one but I did hit my head on the toilet bowl. It didn’t even register as a fall in my Apple Watch. I kind of fell in slow motion and nothing hit hard but my head. I’m left with yet another bruise and another lucky incident. I’m going to run out of those. I think that life on my feet is at an end. Safety first!!!!…
I am very happy I bought my Apple Watch for my birthday especially with my recent falls. Apple Watch here I come. The fall detection was one of the main features that made me decide to purchase the watch, although I love it for many other reasons. So I’ve had a few falls now and not once did my watch register the fall. The first fall that happened was right before my watch tutorial with Apple support. When nothing happened…
#just wanted to add this note because this was such a dismal post. A few hours after I wrote this post I realize something very important, with secondary progressive MS you are not functional one day to Stuck on the floor another. I don’t have relapses anymore. I now realize I was sick with this abscess infection and it played havoc with my MS. So yes, this is a possible future for me with MS, but it won’t happen overnight….
Last night was a very bad night. All my family and friends who haven’t heard the story I’m sorry you’ll be hearing it through my blog. I am fine. If I wasn’t I wouldn’t be writing this today. I played mahjong yesterday for the afternoon and got home around 3. I was completely exhausted more than normal. I started feeling achy as well. I think I was running a low grade fever because of this abscess on my stomach. More…
I realize something last night, for all my complaining about fatigue, I’ve been staying up most nights till 10 o’clock. If you look back to before I saw my doctor, I was in bed by eight and asleep by 8:30. https://multipleexperiences.org/2019/09/03/trip-to-the-neurologist/ This is before he gave me the Adderall. Yes, my body isn’t recovering from my exercise. Yes, I’m still exhausted and finding it hard to move about as easily as I was. However, I’m not at that stage of…
I’m happy to report all the work in my condo is now complete. I had some other little projects done as well as fixing the closet. We re-touched my hallway from the scratches I’ve made with the scooter. I’ve hit into the walls many times and the walls were starting to annoy me. I had a ramp made for my balcony. I can now get out there with my scooter to clean the dog pads as well as to sit…
Down I went. I was in the wheelchair all day. I walked with the walker for all of 5 steps before I missed stepped. I ended up smacking my head into three surfaces on the way down to land with the walker on top of me and my ass in the dogs water bowl. There I was stuck and dazed trying to roll myself over to somehow get up. That took longer than I care to admit. When I achieved…
I wrote a text to my mom at 5:38 that said I almost choked to death, I’m still shaking. I was certainly grateful to be able to write the text and happy to be able to write this blog. I was eating a sugar free Swedish fish and a small piece went down my throat and got stuck. I wasn’t able to cough it out at first and wasn’t able to breathe. I can’t say what happened because it was…
