I was in a bad mood yesterday. I don’t normally have bad moods that last anymore but yesterday I did. I just didn’t snap out of it and truthfully I am not sure I wanted to. I was upset for my daughter Love to my daughter which certainly set the stage for my day but then just little things got to me. Dumb things. The phone constantly ringing drove me nuts. An email I was answering disappeared. My favorite shirt…
Came across this exciting article about repairing myelin yesterday and I wanted to share. https://metro.co.uk/2019/10/09/can-stop-multiple-sclerosis-10875070/?ito=article.amp.share.top.email Twenty-five years ago there were no treatments for multiple sclerosis (MS) – a neurological condition that affects more than 100,000 people living in the UK. Today the picture is very different. There have been major advances in treatment and, following a series of more recent discoveries, we believe we can stop MS. We’ve reached a point where we know what’s causing the disease to progress….
It was one of those MS nights you’d like to forget about if you could. I didn’t even get warnings this time like a stomach cramp or something. I just felt like I might need the bathroom so I got up. I walked about three steps before the accident happened. As my mom says better out then in. The problem was I was alone and already exhausted so this certainly didn’t help. I showered, cleaned and changed and was just…
I went into bed early as I’ve been doing every night recently. Last night I didn’t wake up until 3am. I slept straight from 9-3. That is huge for me!!! Then I slept until 8. I wish I could sleep every night like that but my bladder disagrees. My bladder doesn’t usually hold for more than three hours. However even with that great night sleep I still woke up tired. I would have stayed in bed but my bladder had…
It didn’t flood in the streets yesterday so no daytime pictures to show you. Although that bulldozer is still there I’m excited today because we are playing mahjong here in my building. I’m excited to play but exhausted so I’m grateful to be playing here. I feed the dogs and showered that’s it, I’m wiped out. This is why I straightened my hair because I’d never have the energy anymore to blow dry and style. I’m glad I’m still able…
My fatigue set in very early yesterday making my evening extremely difficult. You know that things are bad when you don’t have the energy to get to the bathroom so when the urge comes it is instant dread. I have one of those hospital bed potty chair right next to me and I wear pads but I’m still trying to hold on to the last bit of dignity while I still can. Eventually I’ll loose that too so I am…
Ok another strange and embarrassing symptom of my MS occurs for no rhyme or reason and has to do with my breasts. Specially my nipples on those breast. I go through periods where they get and stay hard for days. Sometimes it could be to the point of painful. Erect nipples is not a comfortable thing for a long duration. I apologize to any men that are uncomfortable reading this and if it turns you on, all the more power…
It’s beautiful out a cool 63 degrees and I still have to have my AC on. The only downside to my condo is it’s angle. If the wind is blowing the wrong way this condo gets no air and can become hot with the morning sun. Today is that kind of day. There is no breeze out there. I hate that. I love having all the windows open and a cool breeze blowing and I’ve been robbed of it this…
Good morning happy Monday. I thought I’d give you the rundown of how I feel a week later after my Rituxan infusion. I’m happy to say the allergic reaction is healing and I’ve had no more blisters or open sores. Very bizarre. I’m still on the antibiotic and I have two more days left. I’m glad to say I am out of the chance of infection and I’m not gonna get cellulitis. All good news. I worked out yesterday for…
Please donate to a great cause. This is my step brother Howard who bikes for me. He bikes and I can’t. I can barely walk. We need people like him out there raising awareness and funds to fight MS and find a cure. Please help him as he once again bikes for MS. ???? Hi There – It’s Howard, and I’m still out here pedaling for your donations. And now I need to crank up the email campaign – put…
