On my way to visit my sister back in December, we stopped to eat lunch. I started coughing, had a little tickle in my throat. That coughing started to get worse and worse because it was making no progress. I literally started to choke. I was finally given some water and was able to produce the cough that moved the phlegm or whatever was in my throat causing me to cough to begin with. I was shaking by the end…
Should I say Happy Anniversary to myself? It was an after work doctors appointment January 21, 2016 when he said “ENOUGH”. He knew since the summer before I was getting worse, I was the one in denial. On January 22, 2016 I called my job and said my doctor is putting me out on disability and I never was back. I kept pushing and pushing to continue to work. I was working part in the building and part at home,…
As expected I was extremely tired after. It’s because of the large amount of Benadryl that is given. I was in bed asleep by 9:00. I’d love to say that was unusual for me, but during the week that’s my normal bed time. I woke up with a little stomach ache. That can be a number of reasons but it is listed as a side effect of the rituxan. I don’t remember it from any of the other times I…
Third time I’m being infused with Rituxan. I was able to change my infusion place back to my home town instead of NYC. Saves at least 3 hours of the day. I got here at 9am and it’s 9:57 IV is just beginning. Why an hour? Well they didn’t get the doctors orders. Now it is a federal holiday today so getting in touch with the doctor wasn’t going to be easy. Her office at Mount Sinai in NYC is…
Look at my last few weeks…I was gearing up for the holidays, got this puppy, go away for Christmas, my beloved dog Boomer died, I spiral into a complete depression, cried everyday for a week plus but my multiple sclerosis symptoms are relatively the same. Are they better? No, but they aren’t worse. Multiple Sclerosis isn’t directly linked to stress, but it never failed for me when I’d have high periods of stress, about one month later, BANG MS ISSUES….
let’s be real here, if things were going well, I’d still be working. I’d go to work everyday, be around different people, be challenged, strive to be the best and probably be like 76% of the world, stressed out. However, I’m not well, I’m not stressed out like the 76% but my life isn’t easy. I love the look I still get from some people when I tell them I don’t work anymore. You can see their mind questioning you…
http://sumo.ly/moZo I submitted a link to the biotin research/clinical study that showed that it may be helpful in people with progressive forms of multiple sclerosis. I am writing from my own perspective from taking the medicine. I get a 100mg pill I take 3 times a day from Ace pharmacy https://highdosebiotin.net . I just completed my 3rd month. I had a neurologist check up in December and in my timed walking, I was 7 seconds faster than I ever walked in her…
i wanted to go to the specialty grocery store, pick up some plant-based items I couldn’t find at the local store. It’s not a very large store, easy parking, I thought I’d be ok. I had 2 small bags with light stuff. I made it to the car, just had to get in my house. Car to house what 20 steps. 6 steps to first landing until I can regret the chair lift. Yet another task that completely exhausted me…
At my neurologist appointment she wanted me to start taking Alpha Lipoic acid 1200mg a day. She explained that like the biotin study I talked about https://multipleexperiences.org/2016/10/24/high-dose-biotin-with-progressive-ms-a-patients-review/ It was shown to help patients with secondary progressive multiple sclerosis. The vitamin is inexpensive. I got a bottle of 600mg on Amazon for $14.99. I take 2 a day. I just started yesterday. Like anything I will keep you updated to anything I’ve noticed both good and bad with my own MS symptoms. I…
Multiple Sclerosis has a lot of false information out there. Today I felt like talking about the Myths vs the facts of MS. I got this from Youdontknowjackaboutms.com. My thoughts are written in red. MYTH: MOST PEOPLE WITH MS ARE DIAGNOSED AT AN ADVANCED AGE. FACT: Most people are diagnosed with MS between the ages of 20 and 50. Though less common, MS can also appear in young children and teens, as well as much older adults. I was diagnosed…
