MS fatigue one of the most difficult symptoms to explain and deal with. 80% of all MS patients deal with this at some point or another. Fatigue is way past a feeling of tired is to the point of absolute exhaustion. It’s the feeling that each limb is 100lbs heavier than it is. Just walking the few steps to a bathroom is daunting and overwhelming. It never fails you’ll be talking to a friend and you’ll say I’m tired (meaning…
Starting Saturday I will be following a plant based diet. Why Saturday? One of my birthday gifts from my sister and brother-in-law was a gift certificate to Terra Kitchen. They are a home delivery food company that sends the ingredients and you put the meal together. The difference is they cut the ingredients for you which for me is tremendous because I can’t do that anymore. My first delivery is Saturday. I also ordered from Veestro the 21 day kick…
I’ve blogged on this issue before but I wanted to revisit it again. I HAVE BLADDER ISSUES. I can have both hesitancy and incontinence. However my incontinence is more that I get the feeling I have to go to the bathroom and have a very short amount of time to get there. What happens, and this I’ll never understand, is as I get closer to the bathroom that’s when my bladder starts to release, thus the accident. I wanted to…
I don’t know if I can go so far as to say I am thankful for my MS, but I know I could say I’m thankful for the good days. I know I could say I’m thankful that I don’t have the symptoms of the pain. I give a lot of credit to those out there that suffer from chronic pain. That is the one symptom I really don’t know if I can deal with 24/7. So for all my…
Star Wars, The a Empire Strikes Back. My favorite of the original trilogy movies. Why? It’s the struggle the dark side the bleak unknown of the outcome. It has hope though as Luke and Leia watch Lando Calrissiam fly away in the Millennium Falcon in search of Han Solo. When it came out in what 1980 never thought that certain lines would play in my head when relative to having multiple sclerosis. This line Yoda says does. It’s because I…
It’s my birthday tomorrow. For some reason I woke up a little sad today. I think I actually became sad yesterday. I’m always sad at the middle year marks 25, 35 and now 45. I took turning 30 and 40 fine. It seems I’m alone in the 5’s. My divorce started right when I was turning 35. It was such a monumental change in my life. I was still in my house. I still have five cats running around. Boomer…
First let me start off by saying this is at my stage of the disease and my stage of the progression. It is not everybody’s MS path nor is it where you will surely be if your newly diagnosed. Everybody’s multiple sclerosis is different. On Valentine’s Day weekend in 2017 it will be 19 years I’ve had MS. It’s been a long time. I could be 1000 times worse and even though I struggle every single day, understand that I…
Well now I’ve been trying to train Boomer to go to the bathroom. Boomer is the big one first picture. He’ll pee out here but he hasn’t pooped out here yet. Unfortunately he is over 10 years old and he’s used to being walked so it’s going to take some time. But I’m patient. I got cookies in my pocket and eventually will get there. But today I’m just hanging out hoping for the miracle. I did this for the future…
My mother tells the story of when I was two and she walked into Tutor Time. The door opened and every child’s head turned but mine. That led to the diagnosis that would affect my entire life. We found out I had a progressive hearing loss called EVA (enlarged vestibular aqueduct) and when my mother walked through that door, I had already lost all the high frequencies in my hearing. I received the first of two surgeries for my cochlear…
I always wondered what is going on in boomers mind when he looks outside. Boomer doesn’t get up and go outside easily you have to convince him so what is he thinking when he gazes? I’ve noticed lately I too have been glancing out my big window but I know what’s going on inside my mind. My life has become my apartment. The four walls of my home. As my MS has become worse I tend to stay home more…
