I have no words. I’m so frustrated that the only thing I could do was cry. My insurance made some error and terminated me on one of their systems. I knew about this since last week and I had an escalated adjustment that was being done. I didn’t find out until yesterday they didn’t do it by accident when I called for something else. However the kicker is that the error that terminated me, terminated me in my authorization department….
(CNN)In a rare move, the companies that make the multiple sclerosis drug daclizumab (brand name Zinbryta) have voluntarily pulled the medication from the market and stopped all clinical studies after reports of eight cases of serious brain inflammation among patients in Europe Read the full article here: https://www.cnn.com/2018/03/02/health/ms-drug-daclizumab-pulled-bn/index.html Each one of the drugs we take to keep as well, has side effects. You have to weigh the odds, the pros and cons of each of these medicines. I’ve been taking…
Does rain ever affect your multiple sclerosis? I find lately that the moisture in the air does have a small impact on my day. It’s certainly plays a role with my migraines. I’ve had headaches basically all week. However today they are expecting a nor’easter. New York State agencies are gearing up for a Thursday-to-Saturday nor’easter that could drench and blast Long Island with rain and high winds and envelop upstate with snow, officials said. From the moment I woke…
I received a call at 5:15 yesterday, the reason why is the kicker. The pharmacy didn’t have it in stock they had to order it. Well duh, it is a specialty drug not a stock item, of course it had to be ordered!!!! I not only made this appointment 6 months ago but I recently changed the date from Monday to Wednesday. So I’ve spoken to the infusion place a few times over the last few weeks. You’d think maybe…
I’m seeing my sister from California today. She’s in for a very, very fast visit to New York and is coming out to Long Island for the afternoon. Yippee. I haven’t seen her in a while, she lives so far. I’m excited to spend some time with her today. First this morning I have to go to the doctor, yet again, to re-do bloodwork. Something where they didn’t take enough blood to get the test they required done. I don’t…
I kicked ass this morning. New workout and I stood on my feet for a record of 18 minutes. Omg!!! That’s incredible. Granted my feet can’t move too much, but that’s ok, that was an tremendous amount of time. In physical therapy, one of the main things they do for people with multiple sclerosis, or people that can’t really stand on their own anymore, is put them in a device that either stand them up or strap them in bars…
It’s a vision of white outside my window That’s not snow, it’s fog. I can’t see the water at all. The mist down by the water is definitely something I have to get use too. I’ve woken up many mornings to that view instead of this The fog reminds me of the Stephen King short story called The Mist. I think they made a movie out of it. It’s eerie to look at but also cool in its own way….
I’ve added my Beachbody workouts back into my morning. I know that I push my body to its limit when I do these. I also know my body needs a long recovery time. I usually plan accordingly. Today, I didn’t plan on issues with Zoey too. I had to stop my workout to “clean up” after Zoey. Not normally a big deal but my legs were already 20 minutes into the workout. I ended up sliding down on the floor….
When I first was diagnosed, maybe in the first 10 years, I have to admit any little thing I felt I used to think immediately it was the multiple sclerosis. It took me a while to kind of know how MS showed in my body, really what MS was, and how it was going to affect me. Now that it’s been 20 years, I think what I find amazing is when other doctors don’t have an answer so they blame…
It just dawned on me, that February 14 was my 20 year anniversary with MS. It was the weekend of February 14 that I was moving it to my house with my ex-husband. My left leg started to feel numb. The numbness started traveling up my leg through my muscles. I wasn’t just numb, my muscles were becoming week and atrophied. It was The following Friday I went to a family doctor who sent me immediately to this neurologist. To…
