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Coronavirus and MS video

Coronavirus and MS video

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I watched this video yesterday and wanted to share it with everyone. It discuss relevant information about this virus and MS. It discusses the drugs we take and the possible risk factors involved. I actually learned something about my own drug and how it effects my immune system. Hope you find it helpful Coronavirus and MS:  *THANKING THE MS COMMUNITY FOR SHARING YOUR QUESTIONS AND CONCERNS* with Aaron Boster, MD Neurology-MS SpecialistandDamian Washington, Patient Leader CLICK BELOW TO WATCHSTAY INFORMED- UNDERSTANDING MORE ABOUT…

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Rituxan infusion successful

Rituxan infusion successful

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I’m happy to report that I have no blisters today. I had three little red marks last night that looked almost like welts. This morning I only saw one. I can’t even begin to tell you the relief that was for me. I will be able to continue Rituxan until something better comes along. That isn’t the greatest statement but it is better than the alternative of putting me on a drug that might not work for me. The infusion…

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Rituxan infusion on Sunday

Rituxan infusion on Sunday

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I’m a bundle of nerves which is so unlike me. Between my daughter’s school having a positive case of the virus and choosing to let her stay in Albany My daughter school has a positive case of the coronavirus I feel worried. I’m the mom, I’m supposed to protect my kid but instead I’m keeping her away from me, protecting myself. She’d rather be there, thankfully, but I know the decision is also for my own benefit. My daughter will…

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Multiple Sclerosis News Today FAQs on Coronavirus

Multiple Sclerosis News Today FAQs on Coronavirus

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I came across this article and wanted to share it with you. I copied some of the FAQs I thought were probably the ones we’d ask the most but I of course gave you the link to the full article. https://multiplesclerosisnewstoday.com/columns/2020/03/06/coronavirus-covid-19-diet-vitamin-d-ozanimod FAQs About Coronavirus and MS: The recent outbreak of a novel coronavirus (nCoV) strain or variant, called COVID-19, has put nations and health organizations around the world on high alert. Multiple sclerosis (MS) patients could be at a higher…

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Rituxan infusion coming up

Rituxan infusion coming up

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Good morning and happy hump day to all. Got through the day of exhaustion from therapy yesterday. At least I had a justifiable reason for being fatigued. I even made it to my hair appointment and no more grey hairs, at least for the next 5-6 weeks. My wonderful hair dresser, who is also a good friend, even blew out my hair for me saving me a step so I didn’t have to deal with it myself. I’m almost due…

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I am a Multiple Sclerosis Warrior

I am a Multiple Sclerosis Warrior

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I have to say things in my family have been sad. Bad news received about a loved ones health has hit everyone hard. It puts having multiple sclerosis in its respected place. A place that has always helped me deal with my disease on a more positive level. I’m here!!! I didn’t receive a death sentence when I was diagnosed with multiple sclerosis. My disease could be difficult but I could still live a very rewarding life. I’m coming up…

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Dog tired occupational therapy hazard

Dog tired occupational therapy hazard

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Occupational therapy kicked my ass today. I knew my first day back would be rough but wow, that was super duper tough. He started with these tiny little beads I had to put onto a shape. He let me do this with my hands. How nice of him. I had a star shape. This consumed the first 30 minutes of therapy. Trying to put those teeny tiny beads on the teeny tiny holes with my left hand. I was only…

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Life expectancy with Multiple Sclerosis

Life expectancy with Multiple Sclerosis

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I was reading an article yesterday about the life expectancy of people with autoimmune diseases. https://health.usnews.com/health-care/patient-advice/slideshows/autoimmune-diseases-that-can-be-fatal. Of course there was a section dedicated to multiple sclerosis. This said on average life expectancy of someone with MS is 7 years less than the average person without the disease. I’ve heard this number before but it doesn’t make me very happy. My thought is why? Why would MS shorten our life span? Other than complications from the more serious symptoms of MS…

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Meet the Cambridge Scientist on Verge of Curing Multiple Sclerosis

Meet the Cambridge Scientist on Verge of Curing Multiple Sclerosis

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Interesting new breakthrough in multiple sclerosis treatment. This one was new for me so I had to post it for my readers. It isn’t stem cells or B-cell blockers, it is about the cell that turns on in MS that attacks the body. It is about regeneration of damaged tissue. This is the kind of medicine that can help me one day and gives me hope. See the full article here:https://theheartysoul.com/cambridge-scientist-on-verge-of-curing-multiple-sclerosis/?utm_source=3amp The Potential Cure After discovering a small binary switch…

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Unpredictable multiple sclerosis

Unpredictable multiple sclerosis

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My neurology visit was uneventful yesterday for the most part. He did a quick exam and during the exam he said I always forget how myelopathic your MS has always been. He always says that to me. First I had a remember what myelopathic meant and then I remembered what he meant. Myelopathic is referring to the spinal cord. What my doctor means is that my MS is in my spinal cord not in my brain. All my symptoms fall…

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