This is in regards to a number of my blog posts like A honest look at an MS bad day orBackdoor chute suggestion worked. I talk about the embarrassing symptoms that I have that it hopefully helps someone else to feel less embarrassed. It is another part of my disease as out of my control as my gait and my numbness. It isn’t something that I can control anymore than I could control another MS symptom. I get why we…
I was fatigued yesterday doing my normal routine in the morning which involves cleaning up after my dogs, feeding them and morning grooming for me. I had a goal to workout. I knew I should have waited a bit since i was already fatigued but I wanted to get it over with. On top of this my stomach was bothering me. I know better for all these reasons but I pushed it anyway. Within 10 minutes of my chair Zumba…
It’s Saturday which means I don’t have my aid. I love my aid, I truly do. I’m so grateful for everything she does but I look forward to my weekends and my alone time. Is that bad? It is nice to get out of bed whenever I want and get dressed whenever I want. Sometimes I even stay in pajamas all day. My week is still busy enough to tire me out. It doesn’t take much. I like to watch…
I went into the gym in my building this week. It isn’t a large gym but they have more than enough to get a good workout. I have been trying to do some weight lifting exercises in my condo over the weekend. The problem is I’m exhausting myself and my arms and I’m alone. It is causing problems for me when I’m trying to get around. Not the safest thing for someone with MS to be doing. I decided to…
My plans for today got ruined thanks to stomach issues. Since I can’t always control the backend chute I couldn’t risk having an accident outside my home. I was supposed to have mahjong today and I’m so bummed I had to cancel. I love playing and look forward to it each week. This would have been very welcome on a Monday replacing physical therapy. I have no problems skipping that. I started today with an “accident”. Right when my aid…
I was talking this morning to my step sister about MS attacks or relapses if you choose. We were talking about someone undiagnosed for years therefore not on any MS disease modification medicine. I told her how lucky I was that I was quickly diagnosed but more so that way back then there was ANY medicine for MS. I strongly believe that if I wasn’t on some kind of medicine I would have been completely disabled within a window of…
I say this all the time, you can’t plan for things because you just don’t know. What doesn’t cause problems one day may be a gigantic obstacle the next day. One day you feel fine the next you can’t get out of bed. People around me always say it’s the weather or may say maybe you’re getting sick, I just know it’s the nature of the disease. A good example is when I was playing mahjong. I’ve had issues many…
I forget this story because I had a major attack and was diagnosed in a weeks time that the very first people I saw were like quick blips. I was reminded of this story when someone recommended me to see a chiropractor. Understand, this is MY experience and I am not knocking the whole world of chiropractors. I know many people who use them and benefit greatly. I had my major attack Valentine’s Day weekend in 1998. https://multipleexperiences.org/2016/07/15/the-day-i-found-out-i-had-multiple-sclerosis/ I was…
Gabapentin is an anti-epileptic used to control some types of seizures in epilepsy. It is used in multiple sclerosis to control dysesthesias (pain caused by MS lesions) and the pain caused by spasticity. (As per the National Multiple Sclerosis Society) I’ve been taking this drug for years. I’ve had it in a wide range of dosages from 100mg to 600mg. Probably about 4 or more years ago my doctor started prescribing me 300mg to take daily. I took them every…
A few years ago I got a pedicure, as the warmer weather always dictates we should. Except this year I caught a nail fungus on my foot. It started out on one toe, on one nail but didn’t stay that way for long. I saw my regular doctor about it and he gave me some type of cream. When that didn’t work he sent me to a podiatrist. He wasn’t comfortable prescribing anything stronger with me having MS. Well thanks…
